Virnig BA, Tuttle TM, Shamliyan T, Kane RL. Ductal carcinoma in situ of the breast: a systematic review of incidence, treatment, and outcomes. J Natl Cancer Inst. 2010;102(3):170–8. https://doi.org/10.1093/jnci/djp482.
Article
PubMed
Google Scholar
Erbas B, Provenzano E, Armes J, Gertig D. The natural history of ductal carcinoma in situ of the breast: a review. Breast Cancer Res Treat. 2006;97(2):135–44. https://doi.org/10.1007/s10549-005-9101-z.
Article
PubMed
Google Scholar
Brinton LA, Sherman ME, Carreon JD, Anderson WF. Recent trends in breast cancer among younger women in the United States. JNCI. 2008;100(22):1643–8. https://doi.org/10.1093/jnci/djn344.
Article
PubMed
Google Scholar
Smigal C, Jemal A, Ward E, Cokkinides V, Smith R, Howe HL, Thun M. Trends in breast cancer by race and ethnicity: update 2006. CA Cancer J Clin. 2006;56(3):168–83. https://doi.org/10.3322/canjclin.56.3.168.
Article
PubMed
Google Scholar
Cowell CF, Weigelt B, Sakr RA, Ng CK, Hicks J, King TA, Reis-Filho JS. Progression from ductal carcinoma in situ to invasive breast cancer: revisited. Mol Oncol. 2013;7(5):859–69. https://doi.org/10.1016/j.molonc.2013.07.005.
Article
PubMed
PubMed Central
Google Scholar
Mitchell KB, Kuerer H. Ductal carcinoma in situ: treatment update and current trends. Curr Oncol Rep. 2015;17(11):48. https://doi.org/10.1007/s11912-015-0473-x.
Article
PubMed
Google Scholar
Narod SA, Iqbal J, Giannakeas V, Sopik V, Sun P. Breast cancer mortality after a diagnosis of ductal carcinoma in situ. JAMA Oncol. 2015;1(7):888–96. https://doi.org/10.1001/jamaoncol.2015.2510.
Article
Google Scholar
De Morgan S, Redman S, White KJ, Cakir B, Boyages J. ‘Well, have I got cancer or haven't I?’ The psycho-social issues for women diagnosed with ductal carcinoma in situ. Health Expect. 2002;5(4):310–8. https://doi.org/10.1046/j.1369-6513.2002.00199.x.
Article
PubMed
PubMed Central
Google Scholar
Prinjha S, Evans J, Ziebland S. Women’s distress about unexpected DCIS uncertainties and information provision (response to Pryke et al.). J Med Screen. 2011;18(2):105–6. https://doi.org/10.1258/jms.2011.011077.
Article
Google Scholar
Davey C, White V, Warne C, Kitchen P, Villanueva E, Erbas B. Understanding a ductal carcinoma in situ diagnosis: patient views and surgeon descriptions. Eur J Cancer Care. 2011;20(6):776–84. https://doi.org/10.1111/j.1365-2354.2011.01265.x.
Article
CAS
Google Scholar
De Morgan S, Redman S, D’Este C, Rogers K. Knowledge, satisfaction with information, decisional conflict and psychological morbidity amongst women diagnosed with ductal carcinoma in situ (DCIS). Patient Educ Couns. 2011;84(1):62–8. https://doi.org/10.1016/j.pec.2010.07.002.
Article
PubMed
Google Scholar
Rakovitch E, Franssen E, Kim J, Ackerman I, Pignol JP, Paszat L, et al. A comparison of risk perception and psychological morbidity in women with ductal carcinoma in situ and early invasive breast cancer. Breast Cancer Res Treat. 2003;77(3):285–93. https://doi.org/10.1023/A:1021853302033.
Article
PubMed
Google Scholar
Kennedy F, Harcourt D, Rumsey N. Perceptions of ductal carcinoma in situ (DCIS) among UK health professionals. Breast. 2009;18(2):89–93. https://doi.org/10.1016/j.breast.2009.01.004.
Article
PubMed
Google Scholar
Partridge A, Winer JP, Golshan M, Bellon JR, Blood E, Dees EC, Sampson E, Emmons KM, Winer E. Perceptions and management approaches of physicians who care for women with ductal carcinoma in situ. Clin Breast Cancer. 2008;3:275–80. https://doi.org/10.3816/CBC.2008.n.032.
Article
Google Scholar
Mannu GS, Bettencourt-Silva JH, Ahmed F, Cunnick G. A nationwide cross-sectional survey of UK breast surgeons’ views on the management of ductal carcinoma in situ. Int J Breast Cancer. 2015. https://doi.org/10.1155/2015/104231.
Rathert C, Williams ES, McCaughey D, Ishqaidef G. Patient perceptions of patient-centred care: empirical test of a theoretical model. Health Expect. 2015;18(2):199–209. https://doi.org/10.1111/hex.12020.
Article
PubMed
Google Scholar
Rathert C, Wyrwich MD, Boren SA. Patient-centered care and outcomes: a systematic review of the literature. Med Care Res Rev. 2013;70(4):351–79. https://doi.org/10.1177/1077558712465774.
Article
PubMed
Google Scholar
Doyle C, Lennox L, Bell D. A systematic review of evidence on the links between patient experience and clinical safety and effectiveness. BMJ Open. 2013;3(1):e001570. https://doi.org/10.1136/bmjopen-2012-001570.
Article
PubMed
PubMed Central
Google Scholar
Stewart M, Ryan BL, Bodea C. Is patient-centred care associated with lower diagnostic costs? Healthcare Policy. 2011;6(4):27.
PubMed
PubMed Central
Google Scholar
Epstein RM, Duberstein PR, Fenton JJ, Fiscella K, Hoerger M, Tancredi DJ, et al. Effect of a patient-centered communication intervention on oncologist-patient communication, quality of life, and health care utilization in advanced cancer: the VOICE randomized clinical trial. JAMA Oncol. 2017;3(1):92–100. https://doi.org/10.1001/jamaoncol.2016.4373.
Article
PubMed
PubMed Central
Google Scholar
Richards T, Coulter A, Wicks P. Time to deliver patient centred care. Br Med J. 2015. https://doi.org/10.1136/bmj.h530.
Epstein RM, Fiscella K, Lesser CS, Stange KC. Why the nation needs a policy push on patient-centered health care. Health Aff. 2010;29(8):1489–95. https://doi.org/10.1377/hlthaff.2009.0888.
Article
Google Scholar
Kim C, Liang L, Wright FC, Hong NJL, Groot G, Helyer L, et al. Interventions are needed to support patient–provider decision-making for DCIS: a scoping review. Breast Cancer Res Treat. 2018:1–14. https://doi.org/10.1007/s10549-017-4613-x.
Auerbach C, Silverstein LB. Qualitative data: an introduction to coding and analysis. New York City: NYU Press; 2003.
Sandelowski M. Focus on research methods-whatever happened to qualitative description? Res Nurs Health. 2000;23(4):334–40. https://doi.org/10.1002/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G.
Article
CAS
PubMed
Google Scholar
Neergaard MA, Olesen F, Andersen RS, Sondergaard J. Qualitative description–the poor cousin of health research? BMC Med Res Methodol. 2009;9(1):52. https://doi.org/10.1186/1471-2288-9-52.
Article
PubMed
PubMed Central
Google Scholar
Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–57. https://doi.org/10.1093/intqhc/mzm042.
Article
PubMed
Google Scholar
Barbour RS. Checklists for improving rigour in qualitative research: a case of the tail wagging the dog? BMJ. 2001;322(7294):1115. https://doi.org/10.1136/bmj.322.7294.1115.
Article
CAS
PubMed
PubMed Central
Google Scholar
Mays N, Pope C. Qualitative research: rigour and qualitative research. Bmj. 1995;311(6997):109–12. https://doi.org/10.1136/bmj.311.6997.109.
Article
CAS
PubMed
PubMed Central
Google Scholar
Noy C. Sampling knowledge: the hermeneutics of snowball sampling in qualitative research. Int J Soc Res Methodol. 2008;11(4):327–44. https://doi.org/10.1080/13645570701401305.
Article
Google Scholar
Kitson A, Marshall A, Bassett K, Zeitz K. What are the core elements of patient-centred care? A narrative review and synthesis of the literature from health policy, medicine and nursing. J Adv Nurs. 2013;69(1):4–15. https://doi.org/10.1111/j.1365-2648.2012.06064.x.
Article
PubMed
Google Scholar
Boeije H. A purposeful approach to the constant comparative method in the analysis of qualitative interviews. Qual Quant. 2002;36(4):391–409. https://doi.org/10.1023/A:1020909529486.
Article
Google Scholar
Kolb SM. Grounded theory and the constant comparative method: valid research strategies for educators. J Emerg Trends Educ Res Policy Stud. 2012;3(1):83.
Google Scholar
McCormack LA, Treiman K, Rupert D, Williams-Piehota P, Nadler E, Arora NK, et al. Measuring patient-centered communication in cancer care: a literature review and the development of a systematic approach. Soc Sci Med. 2011;72(7):1085–95. https://doi.org/10.1016/j.socscimed.2011.01.020.
Article
PubMed
Google Scholar
Stewart M, Brown JB, Weston WW, McWhinney IR, McWilliam CL, Freeman TR. Patient-centered medicine: transforming the clinical method. 1995. Sage Publ Thousands Oaks Cali-Fornia USA Amin Z Ambul Care Educ Singap Med J. 1999;12:760–3.
Google Scholar
Epstein RM, Franks P, Fiscella K, Shields CG, Meldrum SC, Kravitz RL, Duberstein PR. Measuring patient-centered communication in patient–physician consultations: theoretical and practical issues. Soc Sci Med. 2005;61(7):1516–28. https://doi.org/10.1016/j.socscimed.2005.02.001.
Article
PubMed
Google Scholar
Nickel B, Barratt A, Copp T, Moynihan R, McCaffery K. Words do matter: a systematic review on how different terminology for the same condition influences management preferences. BMJ Open. 2017;7(7):e014129. https://doi.org/10.1136/bmjopen-2016-014129.
Article
PubMed
PubMed Central
Google Scholar
Omer ZB, Hwang ES, Esserman LJ, Howe R, Ozanne EM. Impact of ductal carcinoma in situ terminology on patient treatment preferences. JAMA Intern Med. 2013;173(19):1830–1. https://doi.org/10.1001/jamainternmed.2013.8405.
Article
PubMed
Google Scholar
Esserman L, Yau C. Rethinking the standard for ductal carcinoma in situ treatment. JAMA Oncol. 2015;1(7):881–3. https://doi.org/10.1001/jamaoncol.2015.2607.
Article
PubMed
Google Scholar
Vromans R, Tenfelde K, Pauws S, van Eenbergen M, Mares-Engelberts I, Velikova G. … & Krahmer, E. assessing the quality and communicative aspects of patient decision aids for early-stage breast cancer treatment: a systematic review. Breast Cancer Res Treat. 2019;178(1):1–15. https://doi.org/10.1007/s10549-019-05351-4.
Article
PubMed
PubMed Central
Google Scholar
Volz S, Moore DH, Belkora JK. Do patients use decision and communication aids as prompted when meeting with breast cancer specialists? Health Expect. 2015;18(3):379–91. https://doi.org/10.1111/hex.12042.
Article
PubMed
Google Scholar
Dwamena F, Holmes-Rovner M, Gaulden CM, Jorgenson S, Sadigh G, Sikorskii A, et al. Interventions for providers to promote a patient-centred approach in clinical consultations. Cochrane Database Syst Rev. 2012. https://doi.org/10.1002/14651858.CD003267.pub2.
Bhattacherjee A, Hikmet N. Physicians’ resistance toward healthcare information technology: a theoretical model and empirical test. Eur J Inf Syst. 2007;16(6):725–37. https://doi.org/10.1057/palgrave.ejis.3000717.
Article
Google Scholar
Brenda Wilcox RN, Bruce SD. Patient navigation: a “win-win” for all involved. Oncol Nurs Forum Oncol Nurs Soc. 2010;37(1):21. https://doi.org/10.1188/10.ONF.21-25.
Article
Google Scholar
McKenney KM, Martinez NG, Yee LM. Patient navigation across the spectrum of women’s health care in the United States. Am J Obstet Gynecol. 2018;218(3):280–6. https://doi.org/10.1016/j.ajog.2017.08.009.
Article
PubMed
Google Scholar
Wagner EH, Ludman EJ, Bowles EJA, Penfold R, Reid RJ, Rutter CM, et al. Nurse navigators in early cancer care: a randomized, controlled trial. J Clin Oncol. 2014;32(1):12. https://doi.org/10.1200/JCO.2013.51.7359.
Article
PubMed
Google Scholar
Gotlib Conn L, Hammond Mobilio M, Rotstein OD, Blacker S. Cancer patient experience with navigation service in an urban hospital setting: a qualitative study. Eur J Cancer Care. 2016;25(1):132–40. https://doi.org/10.1111/ecc.12247.
Article
CAS
Google Scholar
Steinberg ML, Fremont A, Khan DC, Huang D, Knapp H, Karaman D, et al. Lay patient navigator program implementation for equal access to cancer care and clinical trials: essential steps and initial challenges. Cancer: Interdiscip Int J Am Cancer Soc. 2006;107(11):2669–77. https://doi.org/10.1002/cncr.22319.
Article
Google Scholar
Freund KM, Battaglia TA, Calhoun E, Dudley DJ, Fiscella K, Paskett E, et al. Patient Navigation Research Program Group. National cancer institute patient navigation research program: methods, protocol, and measures. Cancer. 2008;113(12):3391–9. https://doi.org/10.1002/cncr.23960.
Article
PubMed
PubMed Central
Google Scholar
Burns KK, Bellows M, Eigenseher C, Gallivan J. ‘Practical’ resources to support patient and family engagement in healthcare decisions: a scoping review. BMC Health Serv Res. 2014;14(1):175. https://doi.org/10.1186/1472-6963-14-175.
Article
Google Scholar
Calhoun EA, Whitley EM, Esparza A, Ness E, Greene A, Garcia R, Valverde PA. A national patient navigator training program. Health Promot Pract. 2010;11(2):205–15.
Article
PubMed
Google Scholar