From: Attitudes of oncology patients’ towards biospecimen donation for biobank research
N (%) | |
---|---|
Have your ever heard of biobanks? | |
yes | 238 (43.4) |
no | 310 (56.6) |
Would you donate your cancer tissues left over after a medical procedure to a biobank for research purposes? | |
definitely yes | 331 (60.4) |
rather yes | 179 (32.7) |
rather no | 16 (2.9) |
definitely no | 6 (1.1) |
I do not know | 16 (2.9) |
Who should ask patients to donate their cancer tissues? | |
my oncologist | 254 (46.3) |
my doctor should mention it first and other doctors may ask about it | 59 (10.8) |
a nurse | 0 (0) |
the surgeon who will perform the procedure | 77 (14) |
someone from hospital management | 2 (0.4) |
a hospital representative | 16 (2.9) |
one of the researchers who will conduct a study using the samples | 24 (4.4) |
a biobank representative | 15 (2.7) |
several persons should ask at different stages of cancer treatment and therapy | 64 (11.7) |
I do not know | 35 (6.4) |
missing | 2 (0.4) |
When is the best moment to ask patients for donation of one’s cancer tissues for research purposes? | |
at the moment of diagnosis | 61 (11.1) |
during one of the pre-operative consultations | 130 (23.7) |
before the medical procedure/surgery | 143 (26.1) |
after the medical procedure/surgery | 87 (15.9) |
during one of the post-operative consultations | 37 (6.8) |
when the treatment is over | 28 (5.1) |
I do not know | 62 (11.3) |
What should researchers conducting research on patients’ cancer tissues donated to a biobank do when they discover important health information, i.e. on detection of disease or genetic predispositions | |
nothing | 8 (1.5) |
inform the donor | 104 (19) |
inform the donor’s doctor | 17 (3.1) |
inform both the donor and the donor’s doctor | 371 (67.7) |
I do not know | 47 (8.5) |
missing | 1 (0.2) |