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Table 2 Completeness of data, agreement and correlation for re-abstracted variables concerning diagnostics, surgery, tumor characteristics and treatment from the BCQR

From: Validation of primary and outcome data quality in a Swedish population-based breast cancer quality registry

 

Complete records* in registry, number (%)

Complete records* in medical records, number (%)

Complete records* in both registry and medical records,

number (%)

Exact agreement between registry and medical records,

number (%) (95% CI)

Correlation or Cohen’s kappa**

(95% CI)

Laterality

731 (97.9%)

718 (96.1%)

703 (94.1%)

694 (98.7%)

(97.6–99.3%)

0.97 (C)

(0.96–0.99)

Type of breast surgery

735 (98.4%)

746 (99.9%)

734 (98.3%)

703 (95.8%)

(94.1–97.0%)

0.91 (C)

(0.88–0.94)

Number of investigated lymph nodes

708 (94.8%)

741 (99.2%)

706 (94.5%)

641 (90.8%)

(88.4–92.8%)

0.96 (P)

(0.95–0.96)

Number of metastatic lymph nodes

705 (94.4%)

707 (94.6%)

699 (93.6%)

675 (96.6%)

(94.9–97.7%)

0.98 (P)

(0.97–0.98)

Tumor size (mm)

742 (99.3%)

736 (98.5%)

733 (98.1%)

659 (89.9%)

(87.4–91.9%)

0.90 (P)

(0.89–0.92)

Chemotherapy

747 (100%)

741 (99.2%)

741 (99.2%)

688 (92.8%)

(90.8–95.0%)

0.84 (C)

(0.80–0.88)

Endocrine therapy

747 (100%)

740 (99.1%)

740 (99.1%)

671 (90.7%)

(88.4–92.6%)

0.81 (C)

(0.77–0.85)

Tamoxifen

747 (100%)

737 (98.7%)

737 (98.7%)

647 (87.8%)

(85.0–90.0%)

0.76 (C)

(0.71–0.80)

Aromatase inhibitor

747 (100%)

736 (98.5%)

736 (98.5%)

638 (86.7%)

(84.0–89.0%)

0.50 (C)

(0.41–0.58)

Anti-HER2 therapy

747 (100%)

738 (98.8%)

738 (98.8%)

727 (98.5%)

(97.0–99.0%)

0.71 (C)

(0.55–0.87)

Radiotherapy

747 (100%)

741 (99.2%)

741 (99.2%)

692 (93.4%)

(91.0–95.0%)

0.81 (C)

(0.76–0.86)

  1. *Includes all cases with valid values for the given variable, i.e. excluding unknown and missing values
  2. **Pearson correlation coefficient (P) for numeric variables, Cohen’s kappa (C) for categorical variables