Table 1 Demographic Characteristics of Survey Participants
Demographic/ Cancer Characteristic | Carers | Patients cared for by carers | ||
|---|---|---|---|---|
N | M (SD), range | N | M (SD), range | |
Age at time of study (years) | 129 | 50.2 (17.2), 15-76 | – | – |
Age at diagnosis (years) | 123 | 42.6 (16.7), 0-70 | 118 | 50.5 (15.2), 1-92 |
N | n (%) | N | n (%) | |
Country | 129 | – | – | |
Australia | 91 (70.5%) | |||
United States of America | 14 (10.9%) | |||
United Kingdom | 8 (6.2%) | |||
New Zealand | 6 (4.7%) | |||
Canada | 4 (3.1%) | |||
Othera | 6 (4.7%) | |||
Gender | 129 | 129 | ||
Cis female | 80 (62.0%) | 88 (68.2%) | ||
Cis male | 26 (20.2%) | 35 (27.1%) | ||
Transb | 23 (17.8%) | 4 (3.1%) | ||
Multiple PWCs with different identities | – | 2 (1.6%) | ||
Sexuality | 129 | 129 | ||
Lesbian, gay or homosexual | 95 (73.6%) | 79 (61.2%) | ||
Bisexual or pansexual | 17 (13.2%) | 5 (3.9%) | ||
Queer | 12 (9.3%) | 5 (3.9%) | ||
Straight or heterosexual | 2 (1.6%) | 33 (25.6%) | ||
Different or multiple identities | 3 (2.3%) | 1 (0.8%) | ||
Not sure | – | 6 (4.7%) | ||
Intersex variation | 129 | 129 | ||
Yes | 5 (3.9%) | 0 | ||
No | 124 (96.1%) | 124 (96.1%) | ||
Prefer not to answer | 0 | 0 | ||
Not sure | – | 5 (3.0%) | ||
Race/ethnicity | 129 | – | – | |
Caucasian | 106 (82.2%) | |||
Asian | 5 (3.9%) | |||
Australian Aboriginal, Torres Strait Islander or Maori | 4 (3.1%) | |||
Mixed background | 6 (4.7%) | |||
Other/unclear backgroundc | 8 (6.2%) | |||
Education | 128 | – | – | |
Less than secondary | 7 (5.5%) | |||
Secondary | 17 (13.3%) | |||
Some post-secondary | 9 (7.0%) | |||
Post-secondary | 95 (74.2%) | |||
Location | 129 | – | – | |
Urban | 66 (51.2%) | |||
Regional | 48 (37.2%) | |||
Rural or remote | 15 (11.6%) | |||
Relationship to patient | 129 | – | – | |
Partner/ex-partner | 84 (65.1%) | |||
Family | 31 (24.0%) | |||
Friend | 11 (8.5%) | |||
Different relationship | 1 (0.8%) | |||
Multiple patients/relationships | 2 (1.6%) | |||
Provided care during | 125 | – | – | |
Intervention for cancer risk | 30 (24.0%) | |||
Diagnosis | 96 (76.8%) | |||
Curative treatment | 91 (72.8%) | |||
Survivorship/follow-up care | 72 (57.6%) | |||
Palliative/end-of-life care | 48 (38.4%) | |||
Care provided | 125 | – | – | |
Emotional | 125 (100.0%) | |||
Practical | 109 (87.2%) | |||
Informational | 80 (64.0%) | |||
Physical | 77 (59.7%) | |||
Financial | 50 (38.8%) | |||
Spiritual | 37 (28.7%) | |||
Other responsibilities | 125 | – | – | |
Household responsibilities | 105 (84.0%) | |||
Work/volunteering | 38 (30.4%) | |||
Other caregiving | 22 (17.6%) | |||
Dependent children | 16 (12.8%) | |||
Cancer diagnosis (first) | – | – | 126 | |
Brain | 9 (7.1%) | |||
Breast | 37 (29.4%) | |||
Cervical | 3 (2.4%) | |||
Colorectal | 8 (6.3%) | |||
Head/neck | 10 (7.9%) | |||
Leukaemia | 5 (4.0%) | |||
Lung | 7 (5.6%) | |||
Lymphoma | 6 (4.8%) | |||
Ovarian | 13 (10.3%) | |||
Prostate | 7 (5.6%) | |||
Skin | 3 (2.4%) | |||
Uterine | 4 (3.2%) | |||
Otherd | 11 (8.7%) | |||
Not sure or unknown | 3 (2.4%) | |||
Cancer stage | – | – | 126 | |
Localised | 53 (42.1%) | |||
Regional | 42 (33.3%) | |||
Distant/metastatic | 23 (18.3%) | |||
N/A (e.g. blood cancer) | 1 (0.8%) | |||
Not sure or unclear | 7 (5.6%) | |||
Subsequent cancerse | – | – | 126 | |
ecurrence | 30 (23.3%) | |||
New primary cancer | 19 (14.7%) | |||
Treatment status | – | – | 126 | |
No treatment yet | 5 (3.9%) | |||
On active curative treatment | 12 (9.4%) | |||
On maintenance treatment | 19 (15.0%) | |||
In remission/completed treatment | 35 (27.6%) | |||
Receiving palliative care (no further active treatment) | 2 (1.6%) | |||
Deceased | 51 (40.2%) | |||
Not sure, unclear, or multiple | 3 (2.4%) | |||