Table 1 Detailed overview of included measures in the patient questionnaires

Cancer worry; CWS [26] (primary outcome)

6-item, 4-point scale measures concerns about cancer recurrence and the impact of these concerns on daily functioning

Range 6–24, higher scores indicate greater worrying

X

X

X

Self-rated quality of life; VAS score [27] (primary outcome)

1 item, measures patients’ health-related quality of life

Range 0–100, higher scores indicate greater health-related quality of life

X

X

X

Quality of life (EQ-5D-5L) [27]

5 items, 5-point scale measures patients’ health-related quality of life

X

X

X

Short-Form health index (SF-12) [39]

12 items with 2–6 response options on quality of life

Mental and physical component score based on the US population scoring system, higher scores indicate greater quality of life

X

X

X

Physical symptoms scale of the EORTC-QLQ-C30 [40]

13 items, 4-point scale measure physical symptoms

X

X

X

Healthcare consumption; selection of iMTA Medical Consumption Questionnaire (iMCQ) [41]

6 items, measure frequency of visits to health care practitioners outside the hospital and the extent to which others needed to join the patient in going to these visits, and the use of home care and medication

X

X

X

X

X

X

X

X

X

Work productivity; selection of iMTA Productivity Cost Questionnaire (iPCQ) [33]

3 items measure productivity losses of paid work due to absence from work, reduced productivity while at work and productivity losses related to unpaid work

X

X

X

X

X

X

X

X

X

Perceived risk of recurrence [25]

3 items measure patients’ perceived absolute risk, perceived comparative risk (compared to the average risk in women who have had breast cancer) and perceived course of the risk over time

X

X

X

Patient satisfaction; selection of CQ-breast index [42]

27 items, measure clarity of received information, the accessibility and form of treatment of health care practitioners and satisfaction with received care

X

X

X

Patients’ need for support for fear of cancer recurrence (selection of questionnaire used by Luigjes-Huizer and colleagues [15])

7 items representing seven types of support which can be offered in the hospital. Assesses per type of support whether patients needed and received the support, and, if so, whether it helped

X

X

X

Shared Decision-Making Questionnaire (SDM-Q-9) [43]

9 item, 6-point scale measures patients’ perceived level of involvement in decision-making

Range 0–45, higher scores indicate a greater level of perceived involvement in decision-making

X

Patients’ role in decision-making; Control Preference Scale (CPS) [44]

2 items with 5 response options to assess the patient’s preferred and perceived degree of control when decisions about treatment are being made

X

Health literacy; Set of Brief Screening Questions (SBSQ) [45]

3 items, 5-point Likert scale measure health literacy

An average score of ≤ 2 indicates inadequate health literacy, and a score > 2 indicates adequate health literacy

X

Mental adjustment to cancer; subscales ‘Fighting spirit’ and ‘Helplessness/hopelessness’ of the Mental Adjustment to Cancer scale (MAC) [46]

22 items, 4-point scale measures positive and negative mental adjustment to cancer

Higher scores on Fighting Spirit indicate greater positive mental adjustment, higher scores on Helplessness/hopelessness indicate greater negative mental adjustment to cancer

X

Social engagement and participation; selection of the Lubben Social Network Scale (LSNS) [47]

3 items measuring social engagement in terms of size, closeness and frequency of contacts of a respondent’s social network with family and friends, with 6 response options on number of engaged family members or friends

Higher scores indicate greater social engagement

X

X

X