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Table 3 Topics of discussion with APs during the encounters

From: An exploratory cross-sectional study of the effects of ongoing relationships with accompanying patients on cancer care experience, self-efficacy, and psychological distress

Themes

Topics

Total

G1

G2

p-value

n = 124

(%)

n = 81

(%)

n = 43

(%)

Impacts on daily life

Impacts on and the return to daily life

57 (46.0)

20 (24.7)

27 (62.8)

0.000a

Impacts on the children

16 (12.9)

9 (11.1)

7 (16.3)

0.414

Impacts on marital and sexual life

5 (4.0)

2 (2.5)

3 (7.0)

0.340

The return to work and impacts on professional life

20 (16.1)

9 (11.1)

11 (25.6)

0.044a

Impacts on spiritual life

1 (0.8)

1 (1.2)

0 (0.0)

1.000

How to announce a diagnosis to loved ones and social perceptions

24 (19.4)

11 (13.6)

13 (30.2)

0.033a

Impacts on one’s finances and insurance

4 (3.2)

1 (1.2)

3 (7.0)

0.120

Strategies for living with treatments in the best possible conditions

22 (17.7)

6 (7.4)

16 (37.2)

0.000a

How to regain control over the disease

13 (10.5)

6 (7.4)

7 (16.3)

0.136

Other information

2 (1.6)

0 (0.0)

2 (4.7)

0.118

Clinical issues

Announcement by the physician of the diagnosis of cancer or a genetic predisposition

25 (20.2)

13 (16.0)

12 (27.9)

0.158

Cancer

51 (41.1)

22 (27.2)

29 (67.4)

0.000a

Genetic testing

12 (9.7)

4 (4.9)

8 (18.6)

0.023a

Therapeutic, surgical and reconstructive options for cancer and for breast prostheses

41 (33.1)

13 (16.0)

28 (65.1)

0.000a

Ways to reduce risk in carriers of a genetic mutation that increases the risk of cancer

0 (0.0)

0 (0.0)

0 (0.0)

N/A

Hormonal and reproductive issues, urinary dysfunctions

10 (8.1)

5 (6.2)

5 (11.6)

0.314

Fatigue following treatment, impact on physical appearance and self-esteem

42 (33.9)

20 (24.7)

22 (51.2)

0.005a

Pain and discomfort after treatment or surgery

38 (30.6)

15 (18.5)

23 (53.5)

0.000a

Potential emotions and their management

62 (50.0)

29 (35.8)

33 (76.7)

0.000a

Decision-making processes

17 (13.7)

6 (7.4)

11 (25.6)

0.011a

Other information

1 (0.8)

0 (0.0)

1 (2.3)

0.347

Organizational features

One’s role as an accompanying patient and the PAROLE-Onco project

62 (50.0)

34 (42.0)

28 (65.1)

0.023a

Roles played by various healthcare professionals

32 (25.8)

10 (12.3)

22 (51.2)

0.000a

Roles played by external and internal organizations

20 (16.1)

10 (12.3)

10 (23.3)

0.130

The care trajectory

46 (37.1)

17 (21.0)

29 (67.4)

0.000a

Patients’ rights (e.g., refusing treatment, asking questions)

28 (22.6)

9 (11.1)

19 (44.2)

0.000a

Where and how to get to medical appointments

8 (6.5)

4 (4.9)

4 (9.3)

0.447

Financial support for patients and assistance with transportation

1 (0.8)

1 (1.2)

0 (0.0)

1.000

Other information

10 (8.1)

5 (6.2)

5 (11.6)

0.314

  1. a Statistically significant findings