Themes | Topics | Total | G1 | G2 | p-value |
---|---|---|---|---|---|
n = 124 (%) | n = 81 (%) | n = 43 (%) | |||
Impacts on daily life | Impacts on and the return to daily life | 57 (46.0) | 20 (24.7) | 27 (62.8) | 0.000a |
Impacts on the children | 16 (12.9) | 9 (11.1) | 7 (16.3) | 0.414 | |
Impacts on marital and sexual life | 5 (4.0) | 2 (2.5) | 3 (7.0) | 0.340 | |
The return to work and impacts on professional life | 20 (16.1) | 9 (11.1) | 11 (25.6) | 0.044a | |
Impacts on spiritual life | 1 (0.8) | 1 (1.2) | 0 (0.0) | 1.000 | |
How to announce a diagnosis to loved ones and social perceptions | 24 (19.4) | 11 (13.6) | 13 (30.2) | 0.033a | |
Impacts on one’s finances and insurance | 4 (3.2) | 1 (1.2) | 3 (7.0) | 0.120 | |
Strategies for living with treatments in the best possible conditions | 22 (17.7) | 6 (7.4) | 16 (37.2) | 0.000a | |
How to regain control over the disease | 13 (10.5) | 6 (7.4) | 7 (16.3) | 0.136 | |
Other information | 2 (1.6) | 0 (0.0) | 2 (4.7) | 0.118 | |
Clinical issues | Announcement by the physician of the diagnosis of cancer or a genetic predisposition | 25 (20.2) | 13 (16.0) | 12 (27.9) | 0.158 |
Cancer | 51 (41.1) | 22 (27.2) | 29 (67.4) | 0.000a | |
Genetic testing | 12 (9.7) | 4 (4.9) | 8 (18.6) | 0.023a | |
Therapeutic, surgical and reconstructive options for cancer and for breast prostheses | 41 (33.1) | 13 (16.0) | 28 (65.1) | 0.000a | |
Ways to reduce risk in carriers of a genetic mutation that increases the risk of cancer | 0 (0.0) | 0 (0.0) | 0 (0.0) | N/A | |
Hormonal and reproductive issues, urinary dysfunctions | 10 (8.1) | 5 (6.2) | 5 (11.6) | 0.314 | |
Fatigue following treatment, impact on physical appearance and self-esteem | 42 (33.9) | 20 (24.7) | 22 (51.2) | 0.005a | |
Pain and discomfort after treatment or surgery | 38 (30.6) | 15 (18.5) | 23 (53.5) | 0.000a | |
Potential emotions and their management | 62 (50.0) | 29 (35.8) | 33 (76.7) | 0.000a | |
Decision-making processes | 17 (13.7) | 6 (7.4) | 11 (25.6) | 0.011a | |
Other information | 1 (0.8) | 0 (0.0) | 1 (2.3) | 0.347 | |
Organizational features | One’s role as an accompanying patient and the PAROLE-Onco project | 62 (50.0) | 34 (42.0) | 28 (65.1) | 0.023a |
Roles played by various healthcare professionals | 32 (25.8) | 10 (12.3) | 22 (51.2) | 0.000a | |
Roles played by external and internal organizations | 20 (16.1) | 10 (12.3) | 10 (23.3) | 0.130 | |
The care trajectory | 46 (37.1) | 17 (21.0) | 29 (67.4) | 0.000a | |
Patients’ rights (e.g., refusing treatment, asking questions) | 28 (22.6) | 9 (11.1) | 19 (44.2) | 0.000a | |
Where and how to get to medical appointments | 8 (6.5) | 4 (4.9) | 4 (9.3) | 0.447 | |
Financial support for patients and assistance with transportation | 1 (0.8) | 1 (1.2) | 0 (0.0) | 1.000 | |
Other information | 10 (8.1) | 5 (6.2) | 5 (11.6) | 0.314 |