Sexual dysfunction and fertility-related distress in young adults with cancer over 5 years following diagnosis: study protocol of the Fex-Can Cohort study

Table 1 Overview and timing of assessments in the Fex-Can Cohort

Type of data	Time of diagnosis / treatment start	Baseline 1.5 years	Follow-up 3 years	Follow-up 5 years
Mode of administration
Survey data
Background variables		X	X	X
Sexual function (SexFS v2)		X	X	X
Fertility-related distress (RCAC)		X	X	X
Anxiety and depression (HADS)		X	X	X
Health-related quality of life (EORTC QLQ-C30)		X	X	X
Body Image (BIS)		X	X	X
Self-efficacy		X	X	X
Fertility-related knowledge		X	X	X
Clinical data	X^a	X^b	X^b	X^b

^aExtraction of data from respective quality registry at time of baseline-assessment
^bUpdated information extracted from the quality registries in connection to analyses

ISSN: 1471-2407