Table 2 Patients’ responses to trial participation questionnaire

1

I thought the trial/study offered the best treatment available

12

–

–

–

–

–

–

2

I believed the benefits of treatment in the trial would outweigh the side effects.

11

29

6

1

–

–

–

3

I was satisfied that either treatment in the trial would be suitable.

10

13

1

2

4

1

–

4

I was worried that my illness would get worse unless I joined the trial.

2

8

2

–

75

8

10

5

The idea of randomization worried me.

–

13

1

2

70

7

10

6

I wanted a doctor to choose my treatment rather than randomized by computer

5

21

4

1

25

0

6

7

The doctor told me what I needed to know about the trial.

7

13

2

1

20

1

4

8

I trusted the doctor treating me.

11

–

–

–

4

–

1

9

I was given too much information to read about the trial.

3

13

–

3

45

5

6

10

I was given enough information to read about the trial.

10

8

1

1

4

–

1

11

I knew I could leave the trial at any time and still be treated.

12

–

–

–

–

–

–

12

I did not feel able to say no.

–

8

2

–

88

9

12

13

I wanted to help with the doctor’s research

12

–

–

–

–

–

–

14

I feel that others with my illness will benefit from the results of the trial.

12

–

–

–

–

–

–

15

The doctor wanted me to join the trial.

5

37

5

4

25

3

3

16

Others, for example, family or friends, wanted me to join the trial.

3

12

3

–

46

2

9