Table 1 Baseline characteristics of participants for all phases
| Â | Focus group: patients & relatives | Focus group: Healthcare professionals | Cognitive interviews: patients |
|---|---|---|---|
(n = 5) | (n = 6) | (n = 9) | |
Sex (Women: men) | 3: 2 | 3: 3 | 4: 5 |
Age |  |  | Median: 63 Range: 55–79 |
 30–39 | 1 |  |  |
 40–49 | 0 | 2 |  |
 50–59 | 2 | 3 |  |
 60–69 | 1 | 1 |  |
 70–79 | 1 |  |  |
Religious affiliation | 5 Christian | 2 Christian; 1 Muslim; 2 none; 1 n.d. | 7 Christian; 2 n.d. |
Marital status | |||
 Married | 4 | 4 | 6 |
 Widowed | – | – | 1 |
 Divorced | – | – | 1 |
 Missing | 1 | 2 | 2 |
Education | |||
 Secondary school graduate | 3 | – | 2 |
 Technical qualification | – | 2 | 4 |
 University degree | 2 | 2 | 1 |
 Ph.D. and higher degree | – | 2 | – |
 Missing | – | – | 2 |
Professional experience (years) |  | 16–33 |  |
Time since diagnosis (years) | – | – | Median: 1 Range: 0.5–10 |
 First line treatment | – | – | 4 |
  Plateau phase | 2 after HSCT | – | 3 |
  Relapsed after transplantation | 1 | – | 1 |
 Progressive disease | – | – | 1 |
Performance status (AKPS) | |||
 60% | – | – | 2 |
 70% | – | – | 4 |
 80% | – | – | 1 |
 90% | – | – | 2 |