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Table 3 Criteria taken into consideration by panel in assessing each event in the pathway

From: Achieving a timely diagnosis for teenagers and young adults with cancer: the ACE “too young to get cancer?” study

 

Initial diagnostic assessment

Diagnostic test performance and interpretation

Diagnostic follow up and consultation

Primary care

Secondary care

Patient

Language. Geography. Comorbidity. Psycho-social factors.

Non adherence

Passive/Active FU of results. Unsafe-safety netting. Inconsistent symptoms or resolution of symptoms.

Passive/Active FU of results. Unsafe-safety netting. Inconsistent symptoms or resolution of symptom

Healthcare Professional

Inadequate history and/or examination. Cognitive factors, unfamiliarity with cancer presentation. Comorbidities. Referral norms. Continuity of care.

Misinterpretation of results, false negative. Lack/delay of FU of results. Deficient investigation strategy/wrong test. Communication.

Over reliance on patient to re-present. Timely FU. Communication. Coordination failures. Lack of appreciation or FU of abnormal test result. Continuity of care.

Over reliance on patient to re-present. Timely FU. Communication. Coordination failures. Lack of appreciation or FU of abnormal test result. Continuity of care.

System

Rigid consultation norms. Access/system capacity constraints. Access to diagnostic tests. Administrative failure in booking

Lack of system to deal with failure to attend. Diagnostic testing process complexity. Lack of ownership of results.

Accountability for the patient as they progress through the diagnostic pathway.

Accountability for the patient as they progress through the diagnostic pathway.

Disease

Atypical symptoms and/or presentation.

False negatives.