Table 1 Characteristics of family caregivers and their care recipients
From: Validity and reliability of the EQ-5D-5 L in family caregivers of leukemia patients
Characteristics of family caregivers | Initial survey (n = 298) | Repeated survey (n = 271) |
|---|---|---|
Gender (% of female) | 163 (54.7%) | 150 (55.4%) |
Age (years, mean ± SD) | 41.08 (±10.80) | 40.90 (±10.79) |
Ethnicity (% of Han) | 288 (96.6%) | 268 (97.0%) |
Relationship to patient (n, %) | ||
Spouse | 107 (35.9%) | 94 (34.7%) |
Parent | 132 (44.3%) | 123 (45.4%) |
Child | 43 (14.4%) | 40 (14.8%) |
Other | 16 (5.4%) | 14 (5.2%) |
Level of education (n, %) | ||
No more than primary school | 37 (12.4%) | 35 (12.9%) |
Middle or high school | 196 (65.8%) | 176 (64.9%) |
University | 65 (21.8%) | 60 (22.1%) |
Marital status (n, %) | ||
Married | 280 (94.0%) | 255 (94.1%) |
Other | 18 (6.0%) | 16 (5.9%) |
Employment (n, %) | ||
Employed | 229 (76.8%) | 208 (76.8%) |
Retired | 21 (7.1%) | 18 (6.6%) |
Unemployed | 48 (16.1%) | 45 (16.6%) |
Religious belief (n, %) | ||
No | 254 (85.2%) | 230 (84.9%) |
Yes | 44 (14.8%) | 41 (15.1%) |
Annual household income (Yuan) | ||
≤ 40,000 | 161 (54.0%) | 152 (56.1%) |
40,001-79,999 | 128 (43.0%) | 111 (41.0%) |
≥ 80,000 | 9 (3.0%) | 8 (3.0%) |
ZBI (mean ± SD) | 40.60 (±16.29) | – |
Little or no | 13.90 (±3.35) | – |
Mild to moderate | 30.74 (±6.16) | – |
Moderate to severe | 47.88 (±5.14) | – |
severe | 66.91 (±6.43) | – |
WHOQOL-BREF (mean ± SD) | ||
Physical score | 12.72 (±2.70) | – |
Psychological score | 12.23 (±3.38) | – |
Social score | 13.11 (±3.69) | – |
Environment score | 11.34 (±3.04) | – |
EQ-5D-5 L index (mean ± SD) | 0.813 (±0.221) | – |
EQ-VAS (mean ± SD) | 73.56 (±16.13) | – |
Characteristics of care recipients | ||
Gender(% of female) | 157 (52.7%) | 142 (52.4%) |
Age (years, mean ± SD) | 35.34 (±20.78) | 34.88 (±21.10) |
Types of leukemia (n, %) | ||
ALL | 91 (30.5%) | 86 (31.7%) |
AML | 158 (53.0%) | 140 (51.7%) |
CLL | 8 (2.7%) | 8 (3.0%) |
CML | 41 (13.8%) | 37 (13.7%) |