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Table 1 Characteristics of family caregivers and their care recipients

From: Validity and reliability of the EQ-5D-5 L in family caregivers of leukemia patients

Characteristics of family caregivers Initial survey (n = 298) Repeated survey (n = 271)
 Gender (% of female) 163 (54.7%) 150 (55.4%)
 Age (years, mean ± SD) 41.08 (±10.80) 40.90 (±10.79)
 Ethnicity (% of Han) 288 (96.6%) 268 (97.0%)
Relationship to patient (n, %)
 Spouse 107 (35.9%) 94 (34.7%)
 Parent 132 (44.3%) 123 (45.4%)
 Child 43 (14.4%) 40 (14.8%)
 Other 16 (5.4%) 14 (5.2%)
Level of education (n, %)
 No more than primary school 37 (12.4%) 35 (12.9%)
 Middle or high school 196 (65.8%) 176 (64.9%)
 University 65 (21.8%) 60 (22.1%)
Marital status (n, %)
 Married 280 (94.0%) 255 (94.1%)
 Other 18 (6.0%) 16 (5.9%)
Employment (n, %)
 Employed 229 (76.8%) 208 (76.8%)
 Retired 21 (7.1%) 18 (6.6%)
 Unemployed 48 (16.1%) 45 (16.6%)
Religious belief (n, %)
 No 254 (85.2%) 230 (84.9%)
 Yes 44 (14.8%) 41 (15.1%)
Annual household income (Yuan)
  ≤ 40,000 161 (54.0%) 152 (56.1%)
 40,001-79,999 128 (43.0%) 111 (41.0%)
  ≥ 80,000 9 (3.0%) 8 (3.0%)
 ZBI (mean ± SD) 40.60 (±16.29)
 Little or no 13.90 (±3.35)
 Mild to moderate 30.74 (±6.16)
 Moderate to severe 47.88 (±5.14)
 severe 66.91 (±6.43)
WHOQOL-BREF (mean ± SD)
 Physical score 12.72 (±2.70)
 Psychological score 12.23 (±3.38)
 Social score 13.11 (±3.69)
 Environment score 11.34 (±3.04)
 EQ-5D-5 L index (mean ± SD) 0.813 (±0.221)
 EQ-VAS (mean ± SD) 73.56 (±16.13)
 Characteristics of care recipients
 Gender(% of female) 157 (52.7%) 142 (52.4%)
 Age (years, mean ± SD) 35.34 (±20.78) 34.88 (±21.10)
 Types of leukemia (n, %)
 ALL 91 (30.5%) 86 (31.7%)
 AML 158 (53.0%) 140 (51.7%)
 CLL 8 (2.7%) 8 (3.0%)
 CML 41 (13.8%) 37 (13.7%)