Table 1 Interview Guide

Experiences of the beginning of the disease trajectory

Can you tell me how it all started? From the very beginning?

Experiences of everyday life problems in relation to disease

Please describe how an ordinary day unfolds for you now after your surgery

Experiences of return to home. Challenges, symptoms, digestion, working

How do you manage an ordinary day? Experiences of: Symptoms? Challenges? Needs?

Experiences of the ambulatory visit as an outpatient

What was your experience of your latest follow up visit? What did you talk about?

Have you experienced any new or unresolved issues after your last outpatient visit?

General experience

Please describe follow-up support that has been helpful for you? Not helpful for you?