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Table 1 Patients’ and oncologists’ perception of the first consultation

From: Understanding why cancer patients accept or turn down psycho-oncological support: a prospective observational study including patients’ and clinicians’ perspectives on communication about distress

Variables Patients’ Baseline Interview Questions (T1) Oncologists’ Questionnaire Items (T0)
Talking about psychosocial distress Q: “Did the oncologist talk about your psychosocial distress with you?” Q: “Did you talk with the patient about his/her psychosocial distress?”
  A: Yes/ No/ Don’t remember A: Yes/ No
Importance of talking about psychosocial distress Q: “How important was it for you to talk about your psychosocial distress with the oncologist?” Q: “How important was it for the patient to talk about his/her psychosocial distress?”
  A: Scale from 0 “not important at all” to 10 “very important” A: scale from 0 “not important at all” to 10 “very important”
Information about psycho-oncological support Q: “Did the oncologist inform you about the psycho-oncological support service?” Q: “Did you inform the patient about the psycho-oncological support service?”
  A: Yes/ No/ Don’t remember A: Yes/ No
Specification of psycho-oncological support Q: “Did the oncologist inform you about how the psycho-oncologist can provide support?” Q: “Did you inform the patient about how the psycho-oncologist can provide support?”
  A: Yes/ No/ Don’t remember A: Yes/ No
Recommendation of psycho-oncological support Q: “Did the oncologist recommend that you attend the psycho-oncological support service?” Q: “Did you recommend that the patient attends the psycho-oncological support service?”
  A: Yes/ No/ Don’t remember A: Yes/ No
Helpfulness of psycho-oncological support Q: “How helpful do you think psycho-oncological support would be for yourself?” Q: “How helpful do you think psycho-oncological support would be for the patient?”
  A: scale from 0 “not helpful at all” to 10 “very helpful A: scale from 0 “not helpful at all” to 10 “very helpful
Perceived level of psychosocial distress° Q: “How much distress have you been experiencing in the past week including today?” Q: “How do you perceive the level of distress of the patient?”
  A: Scale from 0 “no distress” to 10 “extreme distress” A: scale from 0 “no distress” to 10 “extreme distress”
Content of psychosocial distress° Q: “What are your greatest burdens?” Q: “What are the patient’s greatest burdens?”
  A: open answer field A: open answer field
Trust in oncologist Q: “How comfortable do you feel talking to the oncologist about personal issues?” -
  A: scale from 0 “not at all” to 10 “very much” -
  1. Q Question/Item, A Answer format. °Questions repeated in patients’ follow-up interview (T2)