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Table 1 Patients’ and oncologists’ perception of the first consultation

From: Understanding why cancer patients accept or turn down psycho-oncological support: a prospective observational study including patients’ and clinicians’ perspectives on communication about distress

Variables

Patients’ Baseline Interview Questions (T1)

Oncologists’ Questionnaire Items (T0)

Talking about psychosocial distress

Q: “Did the oncologist talk about your psychosocial distress with you?”

Q: “Did you talk with the patient about his/her psychosocial distress?”

 

A: Yes/ No/ Don’t remember

A: Yes/ No

Importance of talking about psychosocial distress

Q: “How important was it for you to talk about your psychosocial distress with the oncologist?”

Q: “How important was it for the patient to talk about his/her psychosocial distress?”

 

A: Scale from 0 “not important at all” to 10 “very important”

A: scale from 0 “not important at all” to 10 “very important”

Information about psycho-oncological support

Q: “Did the oncologist inform you about the psycho-oncological support service?”

Q: “Did you inform the patient about the psycho-oncological support service?”

 

A: Yes/ No/ Don’t remember

A: Yes/ No

Specification of psycho-oncological support

Q: “Did the oncologist inform you about how the psycho-oncologist can provide support?”

Q: “Did you inform the patient about how the psycho-oncologist can provide support?”

 

A: Yes/ No/ Don’t remember

A: Yes/ No

Recommendation of psycho-oncological support

Q: “Did the oncologist recommend that you attend the psycho-oncological support service?”

Q: “Did you recommend that the patient attends the psycho-oncological support service?”

 

A: Yes/ No/ Don’t remember

A: Yes/ No

Helpfulness of psycho-oncological support

Q: “How helpful do you think psycho-oncological support would be for yourself?”

Q: “How helpful do you think psycho-oncological support would be for the patient?”

 

A: scale from 0 “not helpful at all” to 10 “very helpful

A: scale from 0 “not helpful at all” to 10 “very helpful

Perceived level of psychosocial distress°

Q: “How much distress have you been experiencing in the past week including today?”

Q: “How do you perceive the level of distress of the patient?”

 

A: Scale from 0 “no distress” to 10 “extreme distress”

A: scale from 0 “no distress” to 10 “extreme distress”

Content of psychosocial distress°

Q: “What are your greatest burdens?”

Q: “What are the patient’s greatest burdens?”

 

A: open answer field

A: open answer field

Trust in oncologist

Q: “How comfortable do you feel talking to the oncologist about personal issues?”

-

 

A: scale from 0 “not at all” to 10 “very much”

-

  1. Q Question/Item, A Answer format. °Questions repeated in patients’ follow-up interview (T2)