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Table 4 Survey measures completed by caregivers in the RCT

From: Values and options in cancer care (VOICE): study design and rationale for a patient-centered communication and decision-making intervention for physicians, patients with advanced cancer, and their caregivers

Domain Measures Study entry 2-4 Day follow-up Quarterly follow-up Post- mortem
Demographics Gender, age, race/ethnicity, SES, relationship with patient X    
Physician-Caregiver Relationship THC   X   Xb
Physician-Caregiver Interaction HCCQ   X   
MUIS X Xa
Caregiver Communicational Self-Efficacy PECPI X   Xa  
Patient Treatment Preferences Caregiver’s beliefs about patient preferences for experimental treatments, life support, palliative care X   Xa  
Patient Illness Acceptance PEACE X    Xb
Patient Well-being MQOL + FACT-G X    Xb
Prognostic Forecasting Estimate of patient’s prognosis X X   
Patient Quality of Death Qualitative questions + QOLND + QOD-LTC-C     Xb
  1. Note. PECPI, Perceived efficacy in caregiver-physician interaction; QOLND, Quality of life near death; QOD-LTC-C, Quality of death long-term care – cognitively intact; other acronyms defined previously (see Table 3).
  2. a Administered at only the first quarterly follow-up.
  3. b Retrospective rating of the death/dying experience, rather than the current moment.