Values and options in cancer care (VOICE): study design and rationale for a patient-centered communication and decision-making intervention for physicians, patients with advanced cancer, and their caregivers

Table 4 Survey measures completed by caregivers in the RCT

Domain	Measures	Study entry	2-4 Day follow-up	Quarterly follow-up	Post- mortem
Demographics	Gender, age, race/ethnicity, SES, relationship with patient	X
Physician-Caregiver Relationship	THC		X		X^b
Physician-Caregiver Interaction	HCCQ		X
Physician-Caregiver Interaction	MUIS		X	X^a
Caregiver Communicational Self-Efficacy	PECPI	X		X^a
Patient Treatment Preferences	Caregiver’s beliefs about patient preferences for experimental treatments, life support, palliative care	X		X^a
Patient Illness Acceptance	PEACE	X			X^b
Patient Well-being	MQOL + FACT-G	X			X^b
Prognostic Forecasting	Estimate of patient’s prognosis	X	X
Patient Quality of Death	Qualitative questions + QOLND + QOD-LTC-C				X^b

Note. PECPI, Perceived efficacy in caregiver-physician interaction; QOLND, Quality of life near death; QOD-LTC-C, Quality of death long-term care – cognitively intact; other acronyms defined previously (see Table 3).
^a Administered at only the first quarterly follow-up.
^b Retrospective rating of the death/dying experience, rather than the current moment.

ISSN: 1471-2407