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Table 3 Experts’ rationales for their stance on guidance and information provision to women regarding breast screening

From: The role of communication in breast cancer screening: a qualitative study with Australian experts

Guiding women towards breast screening

FOR

Maximises screening participationa

Saves livesa

Women will have more treatment optionsa

Overall, screening delivers more benefits than harms to the populationa

Overdiagnosis is not a harm

Providing guidance about good health is a government public health responsibility

You don’t want people to make decisions in public health, you just want them to follow advice

Expecting consumers to make their own informed choice is unfair and unrealistic because the evidence is so complicated

(Some) people want to be told what to do

AGAINST

Individuals should be free to make their own decisionsa

Personal autonomy is importanta

Harm:benefit ratio is equivocal so screening should be an individual choice, not a government-promoted activitya

Screening affects only the individual concerned, so there is no community-benefit argument to justify promotion of screening

Others may not have the best interests of the individual consumer at heart

Consumers tend to be better than policy makers at remembering to consider screening harms as well as benefits, so judgements about screening should be left to consumers

The harms of breast screening are greater than the benefits

Limiting consumer information on overdiagnosis

FOR

Maximises screening participationa

Calling overdiagnosis a “harm” is just one (mis)interpretation of the facts

Women don’t consider overdiagnosis a harm; main harms that women care about are: pain, hassles of parking and making appointments, radiation, breast damage, anxiety about recalls

Population based information on overdiagnosis is not applicable to individuals

The real problem is not overdiagnosis but overtreatment

AGAINST

People should know what they are signing up for when they participate in screeninga

Providing information enables informed decision makinga

Informed decision making is particularly important for breast screening because there are some downsidesa

Providing full information is a professional responsibility

(Some) women want full information

  1. avery strongly/frequently expressed reasons