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Table 5 Improvement scores for, ten questions with the highest improvement score and ten questions with the lowest improvement score

From: Improving cancer patient care: development of a generic cancer consumer quality index questionnaire for cancer patients

Question

Average importance score

% negative experiences

Improvement score

Ten highest improvement scores

If your cancer is heritable, was examination of your relatives discussed?

3.35

69.34

2.33

After completion of the treatment, were you called at home within a week by a healthcare professional to discuss how you were doing?

2.81

71.71

2.01

Did you receive information regarding participation in medical research?

2.76

72.10

1.99

After completion of the treatment, did you receive information regarding the possibilities of care for your emotions?

2.86

66.18

1.89

Were you informed if the waiting time was longer than expected

2.80

63.30

1.77

Were multiple appointments in this hospital planned for the same day?

3.25

53.21

1.73

During aftercare, were you offered help with problems surrounding your feelings?

2.86

57.32

1.64

Did healthcare professionals inform you about patient organisations?

2.53

63.35

1.61

During aftercare, were you offered help with questions regarding getting back into your normal daily routine?

2.76

57.75

1.59

If your cancer is heritable, are you regularly checked for any new tumours?

3.63

41.90

1.52

Ten lowest improvement scores

Were the doctors polite to you?

3.08

1.93

0.06

Were the nurses polite to you?

2.98

2.21

0.07

Were doctors and nurses aware of your situation?

3.60

2.06

0.07

Did the doctors and nurses treat you in a skilful manner?

3.44

2.6

0.09

Was written information clear?

3.20

2.87

0.09

Did healthcare professionals give you contradictory information?

3.50

2.63

0.09

Did the information you received beforehand correspond well with what happened during investigation and treatment?

3.33

3.54

0.12

Did the doctors take you seriously?

3.49

3.45

0.12

Did the doctor give you the test results personally?

3.40

3.57

0.12

Did you trust the doctors and nurses?

3.63

3.46

0.13

  1. For each question the average importance score is shown as measured in the importance questionnaire (1 is lowest, 4 is highest), the percentage of negative experiences (the two most negative categories were taken together, for instance ‘none’ and ‘some’ or ‘never’ and sometimes’).