Table 2 ProtonCare Study Group (PCSG) scientific publications to date

Quality of care and HRQoL during PBT

Prospective, longitudinal, descriptive, quantitative study

Patients treated with PBT for brain tumor (n = 186)

Langegård et al. 2018 [35]

Experiences of symptom management during PBT

Prospective, longitudinal, qualitative study

Patients treated with PBT for brain tumor (n = 22)

Langegård et al. 2019 [36]

Symptom cluster during PBT

Prospective, longitudinal, explorative, quantitative study

Patients treated with PBT for brain tumor (n = 187)

Langegård et al. 2019 [37]

Development and initial psychometric evaluation of a radiotherapy-related symptom assessment tool, based on data from patients with brain tumours undergoing proton beam therapy

Prospective, longitudinal and quantitative design

Patients treated with PBT for brain tumor (n = 234)

Langegård et al. 2020 [30]

Experiences of living away from home when treated with PBT

Prospective, longitudinal, qualitative study

Patients treated with PBT for brain tumor (n = 22)

Möllerberg et al. 2020 [39]

Patients’ perspective in the context of proton beam therapy: summary of a Nordic workshop

Summary of workshop

Ohlsson-Nevo et al. 2020 [32]

Symptom experiences and HRQoL

Prospective, longitudinal, explorative, quantitative study

Patients treated with PBT for brain tumor (n = 266)

Langegård et al. 2021 [38]

Evaluations of skin reactions during PBT – comparing patient-reported vs clinician reported outcomes

Retrospective, quantitative study

Patients treated with PBT for brain tumor (n = 253)

Möllerberg et al. 2021 [40]