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Table 2 Study measures in patients

From: Mainstream germline genetic testing in men with metastatic prostate cancer: design and protocol for a multicenter observational study

Domain

Measurement

Questionnaire T0

Questionnaire T1

Questionnaire T2

   

No PV1

PV1

No PV1

PV1

Baseline characteristics

Study specific questions

X

    

Experience with mainstreaming pathway

Decisional Conflict Scale [50]

X

X

X

X

X

Decision Regret Scale [51]

 

X

X

X

X

Questions adapted from George questionnaire [33]

X

X

X

X

X

Study specific questions

X

X

X

X

X

Psychosocial impact germline test

Hospital Anxiety and Depression Scale [52]

X

X

X

X

X

Distress Thermometer [53]

X

X

X

X

X

Psychosocial Aspects of Hereditary Cancer question 23, 24 [54]

X

    

Knowledge

Questions adapted from Claes questionnaire [55]

X

X

X

X

X

Family communication

Informing Relatives Inventory [56]

  

X

 

X

Study specific questions

 

X

 

X

 

Information regarding pre-test genetic counseling

Study specific questions

X

    
  1. 1pathogenic variant