Table 3 Demographics, treatment characteristics and questionnaire completion of the HRQoL cohort (N = 79 parents)

Demographics

Child/young person’s Age at Diagnosis

M = 5.74(SD = 3.81), R = 1.03–17.20

Child/young person’s Gender

25 females (31.6%)

54 males (68.4%)

Distance from Treatment Center

M = 191.9 km (SD = 479.6), R = 4.4–3922

Immunophenotype

Pre B-cell

64 (81.0%)

T-cell

15 (19.0%)

MPAL/Other

0 (0%)

Treatment Platform

BFM

26 (32.9%)

COG

53 (67.1%)

Risk Classification

Low/Standard Risk

33 (41.8%)

Medium/Average/ Intermediate Risk

22 (27.8%)

High/Very High Risk

14 (17.7%)

Total Number of Questionnaires out of a possible 12 Completed by Participants

Number of questionnaires

Number of participants

1

5 (6.3%)

2

4 (5.1%)

3

7 (8.9%)

4

7 (8.9%)

5

7 (8.9%)

6

9 (11.4%)

7

9 (11.4%)

8

10 (12.7%)

9

8 (10.1%)

10

9 (11.4%)

11

2 (2.5%)

12

1 (1.3%)