Table 2 Characteristics of Symptoms and Quality of Life Scores

Outcome measures

Parent Proxy Report (n = 201)

Child self-report (n = 159)

Parent Proxy Report (n = 201)

Child self-report (n = 167)

Proxy-SSPedi or Mini-SSPedi

 Median total SSPedi scores day 1 (IQR)

14 (8 to 20)

10 (4 to 18)

3 (1 to 7)

4 (1 to 8)

 Mean total SSPedi scores day 1 (SD)

14.8 ± 8.5

11.3 ± 9.8

5.1 ± 5.7

5.4 ± 5.9

 Median minutes completion day 1 (IQR)*

2.0 (1.5 to 3.3)

5.1 (3.8 to 6.5)

1.6 (1.2 to 2.6)

5.0 (4.2 to 6.2)

Day 4 sample size

(n = 191)

(n = 142)

NA

NA

 Median total SSPedi scores day 4 (IQR)

13 (7 to 18)

6 (2 to 12)

 Mean total SSPedi scores day 4 (SD) (n = 191)

13.2 ± 8.2

8.2 ± 8.7

 Median minutes completion day 4 (IQR)*

1.5 (1.1 to 2.2)

3.8 (3.2 to 4.9)

Children’s International Mucositis Evaluation Scale

 Median ChIMES Scores (IQR)

0 (0 to 2)

0 (0 to 2)

0 (0 to 0)

0 (0 to 0)

 Median ChIMES Percent (IQR)

0 (0 to 8.7)

0 (0 to 8.7)

0 (0 to 0)

0 (0 to 0)

Pediatric Nausea Assessment Tool, n (%)

Nausea now

  No nausea at all

132 (66.3%)

132 (84.1%)

191 (95.0%)

153 (91.6%)

  A little bit nauseated

41 (20.6%)

17 (10.8%)

8 (4.0%)

13 (7.8%)

  Even more nauseated

16 (8.0%)

4 (2.5%)

2 (1.0%)

1 (0.6%)

  Nauseated a whole lot

10 (5.0%)

4 (2.5%)

0 (0.0%)

0 (0.0%)

  Vomited yesterday or today

63 (31.5%)

47 (29.7%)

6 (3.0%)

4 (2.4%)

Faces Pain Scale-Revised, median rating (IQR)

0 (0 to 3.5)

0 (0 to 2)

0 (0 to 0)

0 (0 to 0)

Global Quality of Life Categorical Scale, median (IQR)

3 (2 to 3)

1 (1 to 2)

1 (1 to 2)

1 (1 to 1)

Overall Symptom Scale, median (IQR)

2 (2 to 3)

1 (1 to 2)

1 (1 to 1)

1 (1 to 1)

Symptom change rating on day 4, No. (%)

NA

NA

 Much worse

34 (17.9%)

90 (67.2%)

 A little worse

60 (31.6%)

 The same

45 (23.7%)

28 (20.9%)

 A little better

38 (20.0%)

16 (11.9%)

 Much better

13 (6.8%)