Table 3 Optimize EOL Care for Patients with Hematologic Malignancies Study Outcomes

Feasibility

 Proportion of patients who agree to participate in the study (goal at least 60%) (primary)

 Proportion of participants who complete a minimum of 60% of their daily patient-reported assessments (goal at least 80%) (primary)

 Number of home visits required, their average duration, the issues addressed at home, and the interventions delivered to patients at their home

 Number of phone calls required per patient and their average duration

 Number of emails from Medically Home to the primary oncology team

Acceptability

 Acceptability ratings from patients, caregivers, and clinicians

 Exit qualitative interviews with patients, caregivers, and their clinicians

Health Care Utilization

 Proportion of patients requiring a hospitalization in the lats week and month of life

 Number of hospitalizations in the last month of life

 Proportion of patients needing an urgent clinic visit in the last month of life

 Number of urgent clinic visits in the last month of life

 Proportion of patients needing an ED visit in the last month of life

 Number of ED visits in the last month of life

 Death location

 Proportion of days patients spend outside of the hospital or clinic in the last month of life

 Proportion of patients needing an urgent clinic visit, ED visit, or a hospitalization throughout the study period

Patient-reported outcomes

 Changes in symptom burden (ESAS) longitudinally throughout the study

 Changes in QOL (FACT-G) longitudinally throughout the study

 Changes in psychological distress (HADS) longitudinally throughout the study

Caregiver-reported outcomes

 Changes in caregiver QOL (CarGOQoL) longitudinally throughout the study

 Changes in caregiving burden (CRA) longitudinally throughout the study

 Changes in psychological distress (HADS) longitudinally throughout the study

 Caregiver satisfaction with patient’s EO care (FAMCARE)