Table 1 Qualitative interview participant demographics and clinical characteristics (N = 40)
Patients | Advocates | |
|---|---|---|
n = 24 | n = 16 | |
n (%) | n (%) | |
Age (median, IQR) | ||
Median | 57 | 61 |
Range | 33–79 | 36–75 |
Race | ||
Black or African American | 10 (41.7) | 2 (12.5) |
White | 14 (58.3) | 14 (87.5) |
Highest level of education | ||
High School | 5 (20.8) | 0 (0.0) |
Some college/Vocational or Technical School | 9 (37.5) | 2 (12.6) |
College graduate (4 year) | 7 (29.2) | 5 (31.3) |
Master’s degree or Professional degree | 2 (8.3) | 8 (50.0) |
Other | 1 (4.2) | 1 (6.3) |
Rural/Urban Commuting Area (based on zip code) | ||
Rural | 2 (8.3) | – |
Urban | 15 (62.5) | – |
Unassigned/unanswered | 7 (29.2) | 16 (100.0) |
Area Deprivation Index (based on zip code) | ||
Low | 3 (12.5) | – |
Mid | 7 (29.2) | – |
High | 7 (29.2) | – |
Unassigned/unanswered | 7 (29.2) | 16 (100.0) |
Marital status | ||
Single, Unmarried, living with significant other | 5 (20.8) | 3 (18.8) |
Married | 14 (58.3) | 13 (81.3) |
Preference for treatment decision-making style (Control Preferences Scale) | ||
Patient-driven decision making | 1 (4.2) | 0 (0.0) |
Patient-driven decision making with provider input | 5 (20.8) | 9 (56.3) |
Shared decision-making | 14 (58.3) | 6 (37.5) |
Physician-driven decision-making with patient input | 2 (8.3) | 1 (6.3) |
Physician-driven decision-making | 1 (4.2) | 0 (0.0) |
Missing | 1 (4.2) | 0 (0.0) |
Breast cancer diagnosis stage | ||
II | 16 (66.7) | – |
III | 8 (33.3) | – |
Breast cancer type | ||
ER/PR + HER2- | 8 (33.3) | – |
ER/PR- HER2 + | 11 (45.8) | – |
ER/PR- HER2- | 5 (20.8) | – |