Table 1 Participant characteristics
Patients | (n = 8) | Parents (n = 15) Families (n = 14) | |
|---|---|---|---|
Characteristics | n | Characteristics | n |
Gender | Gender | ||
 Female | 4 | Female | 13 |
 Male | 4 | Male | 2 |
Percentage of deprivation (Assessed by the Index of Multiple Deprivation (IMD)) | |||
 10% least deprived | 1 | 10% least deprived | 2 |
 20% least deprived | 2 | 20% least deprived | 2 |
 30% least deprived | 0 | 30% least deprived | 0 |
 40% least deprived | 0 | 40% least deprived | 1 |
 50% least deprived | 2 | 50% least deprived | 2 |
 50% most deprived | 1 | 50% most deprived | 3 |
 40% most deprived | 0 | 40% most deprived | 0 |
 30% most deprived | 1 | 30% most deprived | 2 |
 20% most deprived | 0 | 20% most deprived | 0 |
 10% most deprived | 1 | 10% most deprived | 3 |
Age (years) | Age of child (years) | ||
 Under 8 | (Interviewed parent only) | Under 8 | 6 |
 8–12 | 4 | 8–12 | 4 |
 13–15 | 4 | 13–15 | 4 |
Ethnicity | Ethnicity of child | ||
 Caucasian | 7 | Caucasian | 10 |
 Asian | 1 | Asian | 2 |
 Mixed | 0 | Mixed | 1 |
 Unknown | 0 | Unknown | 1 |
Diagnosis | Â | Diagnosis of child | Â |
 Unbiopsied low grade glioma in child with Neurofibromatosis Type 1 (NF1) | 2 | Unbiopsied low grade glioma in child with Neurofibromatosis Type 1 (NF1) | 4 |
 Pilocytic astrocytoma | 3 | Pilocytic astrocytoma | 3 |
 Medulloblastoma | 2 | Medulloblastoma | 3 |
 Unbiopsied low grade glioma in child with no NF1 | 1 | Unbiopsied low grade glioma in child with no NF1 | 2 |
| Â | Langerhans cell histiocytosis of the brain | 1 | |
| Â | Subependymal giant cell astrocytoma | 1 | |
Years since diagnosis | Years since child’s diagnosis | ||
  < 1 year | 1 | < 1 year | 3 |
 1 < 2 years | 1 | 1 < 2 years | 2 |
 2 < 5 years | 0 | 2 < 5 years | 2 |
 5 < 10 years | 4 | 5 < 10 years | 5 |
  > 10 years | 2 | > 10 years | 2 |
Age at diagnosis | Child’s age at diagnosis | ||
  < 1 year | 0 | < 1 year | 2 |
 1 < 2 years | 2 | 1 < 2 years | 3 |
 2 < 5 years | 2 | 2 < 5 years | 4 |
 5 < 10 years | 3 | 5 < 10 years | 4 |
  > 10 years | 1 | > 10 years | 1 |