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Table 1 Patients demographics and clinical data according to treatment Group

From: Extra-abdominal desmoid tumor fibromatosis: a multicenter EMSOS study

Group

I: Chemotherapy (#17)

II: Hormone therapy (#15)

III: NSAIDS (#16)

IV: Radiotherapy (#13)

V: Surgery (#257)

VI: Active surveillance (#70)

Overall (#388)

Age (years)

 Mean

30,8

39,7

38,1

45,8

36,6

40,6

37,5

 Min

10

15

11

15

3

10

3

 Max

53

74

63

69

81

85

85

Gender

 Female

10

11

8

7

158

46

240

 Male

7

4

8

6

99

24

148

Presentation

 Primary

11

10

14

11

193

57

296

 Recurrent

6

5

2

2

62

13

90

Diagnosis delay

 Mean

20,9

15,8

15,2

13,5

13,1

13,5

13,8

 Min

1

1

2

1

0

0

0

 Max

72

72

53

60

120

120

120

Biopsy

 Incisional

15

10

3

1

134

27

190

 Needle

2

5

13

11

98

41

170

Beta catenin

 Not invastigated

13

9

5

2

179

39

247

 Negative

  

1

 

7

3

11

 Positive

4

6

10

10

57

25

112

Location

 Arm

 

2

1

 

25

9

37

 Foot

1

   

8

2

11

 Forearm

2

   

12

4

18

 Hand/wrist

    

3

 

3

 Leg

2

2

2

3

23

3

35

 Pelvic girdle

5

5

4

 

41

17

72

 Shoulder girdle

3

5

7

7

78

19

119

 Thigh

4

 

1

3

53

12

73

Size

 < 5 cm

3

3

5

 

78

24

113

 5–10 cm

7

9

5

9

118

32

180

 > 10 cm

7

3

6

4

56

13

89

Location

 Deep

17

15

15

12

208

57

324

 Extra-fascial

  

1

1

38

11

51

Nerve Involvement

 Present

4

3

3

8

40

9

67

Neurologic symptoms

 Present

3

4

2

4

28

4

45

Previous local events

 Surgery

6

5

1

1

38

17

68

 Trauma

2

1

3

1

22

4

33

Hormonal status (females only)

 Menopause

1

 

3

 

22

7

33

 Pregnancy

1

   

2

1

4

 Recent pregnancy

1

 

1

5

4

11

Pain

 Absent

3

3

4

3

97

25

135

 Mild

9

4

5

7

74

34

133

 Moderate

4

7

6

 

45

9

71

 Severe

1

1

1

3

11

1

18