Table 2 Top 20 unmet needs among young adult patients (N = 206)

 Fears of spreading of cancer

54.9

57.6

54.4

0.756

54.9

54.8

0.989

51.3

57.0

0.421

48.3

75.0

60.0

0.058

 Feeling down or depressed

51.5

61.5

50.0

0.271

44.1

58.7

0.037 *

42.3

57.0

0.040*

48.3

75.0

51.4

0.134

 Anxiety

48.1

53.8

47.2

0.527

42.2

53.8

0.093

39.7

53.1

0.062

40.5

75.0

54.1

0.015 *

 Concerns about the worries of those close to you

46.6

53.4

45.6

0.428

41.1

51.9

0.122

42.3

49.2

0.335

39.7

68.8

52.7

0.039 *

 Feelings of sadness

45.1

50.0

44.4

0.595

38.2

51.9

0.048 *

37.2

50.0

0.073

39.7

75.0

47.3

0.026 *

 Uncertainty about future

44.2

53.8

42.8

0.288

36.3

51.9

0.024 *

33.3

50.8

0.014 *

34.5

68.8

54.1

0.004**

 Worry that results of treatment are beyond your control

41.7

23.1

44.4

0.039 *

42.2

41.3

0.906

41.0

42.3

0.870

35.3

81.3

40.5

0.002**

 Keeping a positive outlook

39.8

53.8

37.8

0.118

32.6

47.1

0.030 *

28.2

46.9

0.008 **

33.6

68.8

54.1

0.020 *

 Feelings about death and dying

35.9

38.5

35.6

0.773

31.4

40.4

0.178

33.3

37.5

0.545

28.4

50.0

44.6

0.037 *

 Lack of energy/tiredness

46.1

42.3

46.7

0.677

40.1

51.9

0.091

37.2

51.6

0.045 *

45.7

75.0

40.5

0.043 *

 Work around the home

42.2

50.0

41.1

0.391

31.4

52.9

0.002

30.8

49.2

0.009 **

34.5

75.0

47.3

0.005 **

 Feeling unwell a lot of the time

36.9

46.2

35.6

0.295

30.4

43.3

0.055

23.1

45.3

0.001 **

32.8

56.3

39.2

0.166

 Being informed about things you can do to help yourself to get well

40.3

42.3

40.0

0.823

37.3

43.3

0.379

38.5

41.4

0.676

35.3

68.8

41.9

0.036 *

 Being informed about your test results as soon as feasible

38.4

46.2

37.2

0.381

35.3

41.3

0.372

37.2

39.1

0.787

35.3

56.3

39.2

0.268

 Being given explanation of those tests for which you would like explanations

37.8

50.0

36.1

0.172

32.4

43.3

0.106

29.5

43.0

0.053

37.9

56.2

33.8

0.244

 Being informed about cancer which is under control or diminishing

37.3

46.2

36.1

0.322

31.4

43.3

0.078

32.1

40.6

0.217

33.6

68.8

36.5

0.024 *

 Being adequately informed about the benefits and side-effects of treatments before you choose to have them

37.0

46.2

35.6

0.295

33.3

40.4

0.294

33.3

39.1

0.408

35.3

56.3

35.1

0.248

 Having one member of hospital with whom you can talk to about all aspects of your condition, treatment and followup

36.8

38.5

36.7

0.859

31.4

42.3

0.104

32.1

39.8

0.261

34.5

50.0

37.8

0.473

 Having access to professional counseling if you, family or friends need it

36.4

42.3

35.6

0.504

32.4

40.4

0.231

38.5

40.6

0.107

26.7

62.5

45.9

0.002**

 Being treated like a person not just another case

35.4

42.3

34.4

0.433

28.4

42.3

0.037 *

29.5

39.1

0.163

28.4

62.5

40.5

0.015 *

 Changing in sexual feelings

35.4

26.9

33.9

0.332

31.4

34.6

0.359

28.2

35.9

0.428

35.3

25.0

37.8

0.622