Table 1 Demographic characteristics of family member participants and their children
SPARK Family Member Web Pages (n = 40) | Fatigue Care Recommendation (n = 30) | Mouth Sores Care Recommendation (n = 30) | |
|---|---|---|---|
Family Member | |||
Relationship to Patient, n (%) | |||
Mother | 23 (58%) | 22 (73%) | 26 (87%) |
Father | 14 (35%) | 7 (23%) | 4 (13%) |
Other | 3 (8%) | 1 (3%) | 0 (0%) |
Age in Years, Median (Range) | 45 (20–64) | 40 (22–62) | 40 (28–51) |
Male Sex, n (%) | 14 (35%) | 7 (23%) | 4 (13%) |
English First Language, n (%) | 37 (93%) | 21 (70%) | 21 (70%) |
Race, n (%) | |||
White | 26 (65%) | 12 (40%) | 16 (53%) |
Asian | 4 (10%) | 7 (23%) | 4 (13%) |
Black | 0 (0%) | 3 (10%) | 2 (7%) |
Mixed ethnicity or other | 3 (8%) | 7 (23%) | 8 (27%) |
Missing or unknown | 7 (18%) | 1 (3%) | 0 (0%) |
Education, n (%) | |||
High school | 10 (25%) | 4 (13%) | 6 (20%) |
College or university | 30 (75%) | 26 (87%) | 24 (80%) |
Household Income, n (%) | |||
≤ $39,999 | 5 (13%) | 5 (17%) | 5 (17%) |
$40,000–$79,999 | 11 (28%) | 7 (23%) | 8 (27%) |
≥ $80,000 | 23 (58%) | 17 (57%) | 14 (14%) |
Missing | 1 (3%) | 1 (3%) | 3 (10%) |
Employment Status, n (%) | |||
Full-time | 16 (40%) | 10 (33%) | 11 (37%) |
Part-time | 7 (18%) | 2 (7%) | 3 (10%) |
Stay at home or on leave | 16 (40%) | 17 (57%) | 16 (53%) |
Student or missing | 1 (3%) | 1 (3%) | 0 (0%) |
Marital Status, n (%) | |||
Married or common law | 27 (68%) | 25 (83%) | 23 (77%) |
Separated or divorced | 11 (28%) | 3 (10%) | 5 (17%) |
Single or never married | 2 (5%) | 2 (7%) | 2 (7%) |
Patient | |||
Age in Years, Median (Range) | 10 (0–18) | 12 (1–17) | 11 (3–17) |
Male Sex, n (%) | 24 (60%) | 21 (70%) | 18 (60%) |
English as First Language, n (%) | 37 (93%) | 25 (83%) | 24 (80%) |
Diagnosis, n (%) | |||
Leukemia | 17 (43%) | 10 (33%) | 14 (47%) |
Lymphoma | 6 (15%) | 9 (30%) | 9 (30%) |
Solid tumor | 11 (28%) | 8 (27%) | 4 (13%) |
Brain tumor | 3 (8%) | 0 (0%) | 1 (3%) |
Other | 3 (8%) | 3 (10%) | 2 (7%) |
Years from Diagnosis, Median (Range) | 0.5 (0.0–11.4) | 0.3 (0.0–9.9) | 0.3 (0.0–11.3) |
On Active Treatment, n (%) | 34 (85%) | 27 (90%) | 26 (87%) |
Hematopoietic Stem Cell Transplant, n (%) | 8 (20%) | 2 (7%) | 4 (13%) |
Inpatient at Interview, n (%) | 13 (33%) | 14 (47%) | 16 (53%) |