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Table 1 Demographic characteristics of family member participants and their children

From: Development of the SPARK family member web pages to improve symptom management for pediatric patients receiving cancer treatments

  SPARK Family Member Web Pages (n = 40) Fatigue Care Recommendation
(n = 30)
Mouth Sores Care Recommendation
(n = 30)
Family Member
Relationship to Patient, n (%)
 Mother 23 (58%) 22 (73%) 26 (87%)
 Father 14 (35%) 7 (23%) 4 (13%)
 Other 3 (8%) 1 (3%) 0 (0%)
 Age in Years, Median (Range) 45 (20–64) 40 (22–62) 40 (28–51)
 Male Sex, n (%) 14 (35%) 7 (23%) 4 (13%)
 English First Language, n (%) 37 (93%) 21 (70%) 21 (70%)
Race, n (%)
 White 26 (65%) 12 (40%) 16 (53%)
 Asian 4 (10%) 7 (23%) 4 (13%)
 Black 0 (0%) 3 (10%) 2 (7%)
 Mixed ethnicity or other 3 (8%) 7 (23%) 8 (27%)
 Missing or unknown 7 (18%) 1 (3%) 0 (0%)
Education, n (%)
 High school 10 (25%) 4 (13%) 6 (20%)
 College or university 30 (75%) 26 (87%) 24 (80%)
Household Income, n (%)
 ≤ $39,999 5 (13%) 5 (17%) 5 (17%)
 $40,000–$79,999 11 (28%) 7 (23%) 8 (27%)
 ≥ $80,000 23 (58%) 17 (57%) 14 (14%)
 Missing 1 (3%) 1 (3%) 3 (10%)
Employment Status, n (%)
 Full-time 16 (40%) 10 (33%) 11 (37%)
 Part-time 7 (18%) 2 (7%) 3 (10%)
 Stay at home or on leave 16 (40%) 17 (57%) 16 (53%)
 Student or missing 1 (3%) 1 (3%) 0 (0%)
Marital Status, n (%)
 Married or common law 27 (68%) 25 (83%) 23 (77%)
 Separated or divorced 11 (28%) 3 (10%) 5 (17%)
 Single or never married 2 (5%) 2 (7%) 2 (7%)
Patient
 Age in Years, Median (Range) 10 (0–18) 12 (1–17) 11 (3–17)
 Male Sex, n (%) 24 (60%) 21 (70%) 18 (60%)
 English as First Language, n (%) 37 (93%) 25 (83%) 24 (80%)
Diagnosis, n (%)
 Leukemia 17 (43%) 10 (33%) 14 (47%)
 Lymphoma 6 (15%) 9 (30%) 9 (30%)
 Solid tumor 11 (28%) 8 (27%) 4 (13%)
 Brain tumor 3 (8%) 0 (0%) 1 (3%)
 Other 3 (8%) 3 (10%) 2 (7%)
 Years from Diagnosis, Median (Range) 0.5 (0.0–11.4) 0.3 (0.0–9.9) 0.3 (0.0–11.3)
 On Active Treatment, n (%) 34 (85%) 27 (90%) 26 (87%)
 Hematopoietic Stem Cell Transplant, n (%) 8 (20%) 2 (7%) 4 (13%)
 Inpatient at Interview, n (%) 13 (33%) 14 (47%) 16 (53%)