Netherlands | Sweden | United Kingdom |
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Risk assessment | ||
Which factors contribute to my risk? | What factors make up your risk? | I would like to know how risk factors are measured. |
How do you calculate risk? | What do they do to assess your risk? | Why weren’t we tested for BRCA? |
How reliable is this risk measurement? | What is the risk scale based on? | Which factors specifically contributed to my risk? |
Will the risk model be reassessed if a lot of (below) average women still develop breast cancer? | How often can/should you have your risk assessed? | My letter said something about genetic risk, but I didn’t understand it. |
What does my risk mean? | How can I lower my risk? | |
What role do hormones play in breast cancer risk? | ||
From whom will I receive support if necessary? | ||
What are the consequences of my risk? | ||
What are the risk cut-off scores? | ||
Screening | ||
How can you monitor yourself between mammograms? | How quickly do breast cancers grow? | How reliable are my mammograms if cancers are difficult to detect due to my dense breasts? |
At what point should you start worrying (changes to breasts, etc.)? | When does my risk increase sufficiently that I move from average to above average and get more screening? | |
What are the risks if you don’t receive biennial screening? | ||
Provide contact details of professional to contact if you desire screening before allocated interval. | ||
Is the decreased screening frequency based on scientific evidence? | ||
Are there other screening modalities for high risk, such as an ultrasound or MRI? | ||
What are the risks of higher radiation exposure? | ||
Lifestyle | ||
How much effort is required to decrease you breast cancer risk? | Will my risk be reassessed after I’ve changed my lifestyle? | Missed opportunity that not all women were informed of the link between lifestyle and breast cancer risk. |
How can you measure the effects of lifestyle changes on breast cancer risk? | How quickly does your breast cancer risk change after you’ve made lifestyle changes? | |
Where can you go for lifestyle advice? | ||
I need scientific evidence on the link between lifestyle and breast cancer. | ||
How much do I have to pay if I want to participate in a lifestyle programme? | ||
By how much can lifestyle decrease your risk? | ||
I need a unified message on diet. | ||
Is diet or exercise more effective? | ||
How do I lower my risk if I already have a healthy lifestyle? | ||
Risk-reducing medication | ||
How does tamoxifen reduce your risk? | Does tamoxifen have any side effects? | Will there be a follow-up procedure? |
Why do I only need to take it for five years? | How does tamoxifen work? | How great is the risk reduction of tamoxifen? |
Can I take tamoxifen in combination with other medication? | Are the side effects permanent or do they disappear when you stop taking the medication? | Do the effects of tamoxifen outweigh the risks caused by an unhealthy lifestyle? |
Will tamoxifen still work as a treatment for breast cancer when I’ve already used it preventatively? | How do you measure the risk reduction after you’ve started on the tamoxifen? | Will taking tamoxifen for less than five years still be helpful, or do more harm than good? |
What is the magnitude of the risk reduction that you can accomplish with tamoxifen? | How many women have taken tamoxifen preventatively? | |
What are the short and long term side effects? | Is it safe to stop taking tamoxifen after five years? | |
What are alternatives to tamoxifen? | What are alternatives to tamoxifen? | |
Is tamoxifen well tested? | How well tested is tamoxifen? | |
How much do I have to pay for tamoxifen? | How does tamoxifen affect the menopause? | |
Will the risk-reducing effects of tamoxifen last forever? | Is your risk gone after you’ve taken tamoxifen for five years? | |
Can the effectiveness of tamoxifen in lowering my risk be measured? |