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Table 1 Psychological and Cognitive Measures

From: The chemo-gut study: investigating the long-term effects of chemotherapy on gut microbiota, metabolic, immune, psychological and cognitive parameters in young adult Cancer survivors; study protocol

Outcome

Measure

Scoring

Statement Example

Depression

PROMIS - Ca Item Bank v1.0 - Emotional Distress - Depression questionnaire: 30 items assessing presence and severity of depression

Patient rated on 5 point scale from “never” (1) to “always” (5)

“In the past 7 days… I felt helpless”

Anxiety

PROMIS - Ca Item Bank v1.0 - Emotional Distress - Anxiety questionnaire: 22 items re: symptoms of anxiety

Patient rated 5 point scale from “never” (1) to “always” (5)

“In the past 7 days… my worries overwhelmed me”

Post-Traumatic Stress Disorder (PTSD) symptoms

Impact of Life Events Scale: 22 items divided into 3 subscales that include avoidance, intrusion, and hyper-arousal. Evaluates symptom presence, severity, and degree of impairment

Patient rated 5 point scale from “not at all” (0) to “extremely” (4)

“How distressing has each difficulty been for you during the past 7 days with respect to cancer… I had trouble staying asleep”

Social Isolation

PROMIS Item Bank v2.0 - Social Isolation 14 item Short Form: evaluates feelings about perceived social isolation

Patient rated on a 5 point scale from “never” (1) to “always” (5)

“I feel isolated from others”

Pain Behaviour

PROMIS: Item Bank v.2.0 – Pain Behavior scale: 20 items evaluating behaviours related to pain

Patient rated from “Had no pain” (x), Never (1) to “Almost Always” (5)

“In the past 7 days, when I was in pain… I took medication for the pain”

Fatigue

PROMIS: Item Bank v1.0 - Fatigue - Short Form 8a scale: 8 items re: fatigue frequency and intensity

Patient rated on a 5 point scale from 1 (Not at all or Never) to 5 (Very much or Always)

“In the past 7 days… how run-down did you feel on average?”

Cognitive Function

PROMIS: Item Bank v2.0 – Cognitive Function: 32 items re: cognitive function including frequency and severity of cognitive concerns

Patient rated on a 5 point scale from “very often (several times a day)” (1) to “never” (5)

“In the past 7 days… I have had trouble concentrating”