TY - JOUR AU - André, F. AU - Bachelot, T. AU - Commo, F. AU - Campone, M. AU - Arnedos, M. AU - Dieras, V. PY - 2014 DA - 2014// TI - Comparative genomic hybridisation array and DNA sequencing to direct treatment of metastatic breast cancer: a multicentre, prospective trial (SAFIR01/UNICANCER) JO - Lancet Oncol VL - 15 UR - https://doi.org/10.1016/S1470-2045(13)70611-9 DO - 10.1016/S1470-2045(13)70611-9 ID - André2014 ER - TY - JOUR AU - Horak, P. AU - Fröhling, S. AU - Glimm, H. PY - 2016 DA - 2016// TI - Integrating next-generation sequencing into clinical oncology: strategies, promises and pitfalls JO - ESMO Open VL - 1 UR - https://doi.org/10.1136/esmoopen-2016-000094 DO - 10.1136/esmoopen-2016-000094 ID - Horak2016 ER - TY - JOUR AU - Yanes, T. AU - Willis, A. M. AU - Meiser, B. AU - Tucker, K. M. AU - Best, M. PY - 2018 DA - 2018// TI - Psychosocial and behavioral outcomes of genomic testing in cancer: a systematic review JO - Eur J Hum Genet VL - 27 UR - https://doi.org/10.1038/s41431-018-0257-5 DO - 10.1038/s41431-018-0257-5 ID - Yanes2018 ER - TY - JOUR AU - Gray, S. t. a. c. y. W. AU - Hicks-Courant, K. a. t. h. e. r. i. n. e. AU - Lathan, C. h. r. i. s. t. o. p. h. e. r. S. AU - Garraway, L. e. v. i. AU - Park, E. l. y. s. e. R. AU - Weeks, J. a. n. e. C. PY - 2012 DA - 2012// TI - Attitudes of Patients With Cancer About Personalized Medicine and Somatic Genetic Testing JO - Journal of Oncology Practice VL - 8 UR - https://doi.org/10.1200/JOP.2012.000626 DO - 10.1200/JOP.2012.000626 ID - Gray2012 ER - TY - JOUR AU - Yusuf, R. A. AU - Rogith, D. AU - Hovick, S. R. AU - Peterson, S. K. AU - Burton-Chase, A. M. AU - Fellman, B. M. PY - 2015 DA - 2015// TI - Attitudes toward molecular testing for personalized cancer therapy JO - Cancer VL - 121 UR - https://doi.org/10.1002/cncr.28966 DO - 10.1002/cncr.28966 ID - Yusuf2015 ER - TY - JOUR AU - Blanchette, P. S. AU - Spreafico, A. AU - Miller, F. A. AU - Chan, K. AU - Bytautas, J. AU - Kang, S. PY - 2014 DA - 2014// TI - Genomic testing in cancer: patient knowledge, attitudes, and expectations JO - Cancer VL - 120 UR - https://doi.org/10.1002/cncr.28807 DO - 10.1002/cncr.28807 ID - Blanchette2014 ER - TY - JOUR AU - Mandelker, D. AU - Zhang, L. AU - Kemel, Y. PY - 2017 DA - 2017// TI - Mutation detection in patients with advanced cancer by universal sequencing of cancer-related genes in tumor and normal dna vs guideline-based germline testing JO - JAMA VL - 318 UR - https://doi.org/10.1001/jama.2017.11137 DO - 10.1001/jama.2017.11137 ID - Mandelker2017 ER - TY - JOUR AU - Miller, F. A. AU - Hayeems, R. Z. AU - Bytautas, J. P. AU - Bedard, P. L. AU - Ernst, S. AU - Hirte, H. PY - 2014 DA - 2014// TI - Testing personalized medicine: patient and physician expectations of next-generation genomic sequencing in late-stage cancer care JO - Eur J Hum Genet VL - 22 UR - https://doi.org/10.1038/ejhg.2013.158 DO - 10.1038/ejhg.2013.158 ID - Miller2014 ER - TY - JOUR AU - Liang, R. AU - Meiser, B. AU - Smith, S. AU - Kasparian, N. A. AU - Lewis, C. R. AU - Chin, M. AU - Long, G. V. AU - Ward, R. AU - Menzies, A. M. AU - Harris-Wai, J. N. AU - Kaur, R. PY - 2016 DA - 2016// TI - Advanced cancer patients’ attitudes towards, and experiences with, screening for somatic mutations in tumours: a qualitative study JO - European Journal of Cancer Care VL - 26 UR - https://doi.org/10.1111/ecc.12600 DO - 10.1111/ecc.12600 ID - Liang2016 ER - TY - JOUR AU - Wakefield, C. E. AU - Kasparian, N. A. AU - Meiser, B. AU - Homewood, J. AU - Kirk, J. AU - Tucker, K. PY - 2007 DA - 2007// TI - Attitudes toward genetic testing for cancer risk after genetic counseling and decision support: a qualitative comparison between hereditary cancer types JO - Genet Test VL - 11 UR - https://doi.org/10.1089/gte.2007.0013 DO - 10.1089/gte.2007.0013 ID - Wakefield2007 ER - TY - STD TI - Goldberg C. Concerns that rosy direct-to-consumer ads hype Cancer drugs to vulnerable patients 2017. Available from: https://www.wbur.org/commonhealth/2017/01/31/direct-to-consumer-cancer-drugs. [cited 2018 08/11/2018]. UR - https://www.wbur.org/commonhealth/2017/01/31/direct-to-consumer-cancer-drugs ID - ref11 ER - TY - JOUR AU - Thavaneswaran, S. AU - Sebastian, L. AU - Ballinger, M. AU - Best, M. AU - Hess, D. AU - Lee, C. K. PY - 2018 DA - 2018// TI - Cancer molecular screening and therapeutics (MoST): a framework for multiple, parallel signal-seeking studies of targeted therapies for rare and neglected cancers JO - Med J Aust VL - 209 UR - https://doi.org/10.5694/mja18.00227 DO - 10.5694/mja18.00227 ID - Thavaneswaran2018 ER - TY - JOUR AU - Best, M. AU - Newson, A. J. AU - Meiser, B. AU - Juraskova, I. AU - Goldstein, D. AU - Tucker, K. PY - 2018 DA - 2018// TI - The PiGeOn project: protocol for a longitudinal study examining psychosocial, behavioural and ethical issues and outcomes in cancer tumour genomic profiling JO - BMC Cancer VL - 18 UR - https://doi.org/10.1186/s12885-018-4310-0 DO - 10.1186/s12885-018-4310-0 ID - Best2018 ER - TY - JOUR AU - Bowen, G. A. PY - 2008 DA - 2008// TI - Naturalistic inquiry and the saturation concept: a research note JO - Qual Res VL - 8 UR - https://doi.org/10.1177/1468794107085301 DO - 10.1177/1468794107085301 ID - Bowen2008 ER - TY - JOUR AU - Braun, V. AU - Clarke, V. PY - 2006 DA - 2006// TI - Using thematic analysis in psychology JO - Qual Res Psychol VL - 3 UR - https://doi.org/10.1191/1478088706qp063oa DO - 10.1191/1478088706qp063oa ID - Braun2006 ER - TY - JOUR AU - Berger, R. PY - 2015 DA - 2015// TI - Now I see it, now I don’t: researcher’s position and reflexivity in qualitative research JO - Qual Res VL - 15 UR - https://doi.org/10.1177/1468794112468475 DO - 10.1177/1468794112468475 ID - Berger2015 ER - TY - CHAP AU - Hansen, A. n. d. e. r. s. AU - Cottle, S. i. m. o. n. AU - Negrine, R. a. l. p. h. AU - Newbold, C. h. r. i. s. PY - 1998 DA - 1998// TI - Content Analysis BT - Mass Communication Research Methods PB - Macmillan Education UK CY - London UR - https://doi.org/10.1007/978-1-349-26485-8_5 DO - 10.1007/978-1-349-26485-8_5 ID - Hansen1998 ER - TY - JOUR AU - Schrader, K. A. AU - Cheng, D. T. AU - Joseph, V. PY - 2016 DA - 2016// TI - Germline variants in targeted tumor sequencing using matched normal dna JO - JAMA Oncol VL - 2 UR - https://doi.org/10.1001/jamaoncol.2015.5208 DO - 10.1001/jamaoncol.2015.5208 ID - Schrader2016 ER - TY - JOUR AU - Sulmasy, D. P. AU - Astrow, A. B. AU - He, M. K. AU - Seils, D. M. AU - Meropol, N. J. AU - Micco, E. PY - 2010 DA - 2010// TI - The culture of faith and hope: patients’ justifications for their high estimations of expected therapeutic benefit when enrolling in early phase oncology trials JO - Cancer VL - 116 UR - https://doi.org/10.1002/cncr.25201 DO - 10.1002/cncr.25201 ID - Sulmasy2010 ER - TY - STD TI - FSC moves to prohibit genetic test disclosure. https://www.insurancenews.com.au/life-insurance/fsc-moves-to-prohibit-genetic-test-disclosure. Accessed 9 May 19. UR - https://www.insurancenews.com.au/life-insurance/fsc-moves-to-prohibit-genetic-test-disclosure ID - ref20 ER - TY - JOUR AU - Armstrong, K. AU - Weber, B. AU - FitzGerald, G. AU - Hershey, J. C. AU - Pauly, M. V. AU - Lemaire, J. PY - 2003 DA - 2003// TI - Life insurance and breast cancer risk assessment: adverse selection, genetic testing decisions, and discrimination JO - Am J Med Genet A VL - 120A UR - https://doi.org/10.1002/ajmg.a.20025 DO - 10.1002/ajmg.a.20025 ID - Armstrong2003 ER - TY - JOUR AU - Armstrong, K. AU - Putt, M. AU - Halbert, C. H. AU - Grande, D. AU - Schwartz, J. S. AU - Liao, K. PY - 2012 DA - 2012// TI - The influence of health care policies and health care system distrust on willingness to undergo genetic testing JO - Med Care VL - 50 UR - https://doi.org/10.1097/MLR.0b013e31824d748b DO - 10.1097/MLR.0b013e31824d748b ID - Armstrong2012 ER - TY - JOUR AU - Chivers Seymour, K. AU - Addington-Hall, J. AU - Lucassen, A. M. AU - Foster, C. L. PY - 2010 DA - 2010// TI - What facilitates or impedes family communication following genetic testing for Cancer risk? A systematic review and meta-synthesis of primary qualitative research JO - J Genet Couns VL - 19 UR - https://doi.org/10.1007/s10897-010-9296-y DO - 10.1007/s10897-010-9296-y ID - Chivers Seymour2010 ER - TY - JOUR AU - Gaff, C. L. AU - Collins, V. AU - Symes, T. AU - Halliday, J. PY - 2005 DA - 2005// TI - Facilitating family communication about predictive genetic testing: Probands’ perceptions JO - J Genet Couns VL - 14 UR - https://doi.org/10.1007/s10897-005-0412-3 DO - 10.1007/s10897-005-0412-3 ID - Gaff2005 ER - TY - JOUR AU - Metcalfe, A. AU - Coad, J. AU - Plumridge, G. M. AU - Gill, P. AU - Farndon, P. PY - 2008 DA - 2008// TI - Family communication between children and their parents about inherited genetic conditions: a meta-synthesis of the research JO - Eur J Hum Genet VL - 16 UR - https://doi.org/10.1038/ejhg.2008.84 DO - 10.1038/ejhg.2008.84 ID - Metcalfe2008 ER - TY - JOUR AU - Roshanai, A. H. AU - Lampic, C. AU - Rosenquist, R. AU - Nordin, K. PY - 2010 DA - 2010// TI - Disclosing cancer genetic information within families: perspectives of counselees and their at-risk relatives JO - Familial Cancer VL - 9 UR - https://doi.org/10.1007/s10689-010-9364-3 DO - 10.1007/s10689-010-9364-3 ID - Roshanai2010 ER - TY - JOUR AU - Forrest, K. AU - Simpson, S. AU - Wilson, B. AU - Teijlingen, E. AU - McKee, L. AU - Haites, N. PY - 2003 DA - 2003// TI - To tell or not to tell: barriers and facilitators in family communication about genetic risk JO - Clin Genet VL - 64 UR - https://doi.org/10.1034/j.1399-0004.2003.00142.x DO - 10.1034/j.1399-0004.2003.00142.x ID - Forrest2003 ER - TY - JOUR AU - Morrow, A. AU - Jacobs, C. AU - Best, M. AU - Greening, S. AU - Tucker, K. PY - 2018 DA - 2018// TI - Genetics in palliative oncology: a missing agenda? A review of the literature and future directions JO - Support Care Cancer VL - 26 UR - https://doi.org/10.1007/s00520-017-4017-9 DO - 10.1007/s00520-017-4017-9 ID - Morrow2018 ER - TY - JOUR AU - Biesecker, B. AU - Austin, J. AU - Caleshu, C. PY - 2017 DA - 2017// TI - Theories for psychotherapeutic genetic counseling: fuzzy trace theory and cognitive behavior theory JO - J Genet Couns VL - 26 UR - https://doi.org/10.1007/s10897-016-0023-1 DO - 10.1007/s10897-016-0023-1 ID - Biesecker2017 ER - TY - JOUR AU - Ayuso, C. AU - Millán, J. M. AU - Mancheño, M. AU - Dal-Ré, R. PY - 2013 DA - 2013// TI - Informed consent for whole-genome sequencing studies in the clinical setting. Proposed recommendations on essential content and process JO - Eur J Hum Genet VL - 21 UR - https://doi.org/10.1038/ejhg.2012.297 DO - 10.1038/ejhg.2012.297 ID - Ayuso2013 ER - TY - JOUR AU - Hammami, M. M. AU - Al-Jawarneh, Y. AU - Hammami, M. B. AU - Qadire, M. PY - 2014 DA - 2014// TI - Information disclosure in clinical informed consent:“reasonable” patient’s perception of norm in high-context communication culture JO - BMC Med Ethics VL - 15 UR - https://doi.org/10.1186/1472-6939-15-3 DO - 10.1186/1472-6939-15-3 ID - Hammami2014 ER - TY - JOUR AU - Matsuyama, R. AU - Reddy, S. AU - Smith, T. J. PY - 2006 DA - 2006// TI - Why do patients choose chemotherapy near the end of life? A review of the perspective of those facing death from cancer JO - J Clin Oncol VL - 24 UR - https://doi.org/10.1200/JCO.2005.03.6236 DO - 10.1200/JCO.2005.03.6236 ID - Matsuyama2006 ER - TY - JOUR AU - Hancock, K. AU - Clayton, J. M. AU - Parker, S. M. AU - Wal, d. S. AU - Butow, P. N. AU - Carrick, S. PY - 2007 DA - 2007// TI - Truth-telling in discussing prognosis in advanced life-limiting illnesses: a systematic review JO - Palliat Med VL - 21 UR - https://doi.org/10.1177/0269216307080823 DO - 10.1177/0269216307080823 ID - Hancock2007 ER - TY - JOUR AU - DeMartini, J. AU - Fenton, J. J. AU - Epstein, R. AU - Duberstein, P. AU - Cipri, C. AU - Tancredi, D. PY - 2018 DA - 2018// TI - Patients’ hopes for advanced Cancer treatment JO - J Pain Symptom Manag VL - 57 UR - https://doi.org/10.1016/j.jpainsymman.2018.09.014 DO - 10.1016/j.jpainsymman.2018.09.014 ID - DeMartini2018 ER - TY - JOUR AU - Temel, J. S. AU - Gainor, J. F. AU - Sullivan, R. J. AU - Greer, J. A. PY - 2018 DA - 2018// TI - Keeping expectations in check with immune checkpoint inhibitors JO - J Clin Oncol VL - 36 UR - https://doi.org/10.1200/JCO.2017.76.2146 DO - 10.1200/JCO.2017.76.2146 ID - Temel2018 ER - TY - JOUR AU - Campbell, T. C. AU - Carey, E. C. AU - Jackson, V. A. AU - Saraiya, B. AU - Yang, H. B. AU - Back, A. L. PY - 2010 DA - 2010// TI - Discussing prognosis: balancing hope and realism JO - Cancer J VL - 16 UR - https://doi.org/10.1097/PPO.0b013e3181f30e07 DO - 10.1097/PPO.0b013e3181f30e07 ID - Campbell2010 ER - TY - JOUR AU - Miller, N. AU - Rogers, S. PY - 2018 DA - 2018// TI - A review of question prompt lists used in the oncology setting with comparison to the patient concerns inventory JO - Eur J Cancer Care VL - 27 UR - https://doi.org/10.1111/ecc.12489 DO - 10.1111/ecc.12489 ID - Miller2018 ER - TY - JOUR AU - Kiely, B. E. AU - Tattersall, M. H. AU - Stockler, M. R. PY - 2010 DA - 2010// TI - Certain death in uncertain time: informing hope by quantifying a best case scenario JO - J Clin Oncol VL - 28 UR - https://doi.org/10.1200/JCO.2009.27.3326 DO - 10.1200/JCO.2009.27.3326 ID - Kiely2010 ER - TY - JOUR AU - Kiely, B. AU - McCaughan, G. AU - Christodoulou, S. AU - Beale, P. AU - Grimison, P. AU - Trotman, J. PY - 2013 DA - 2013// TI - Using scenarios to explain life expectancy in advanced cancer: attitudes of people with a cancer experience JO - Support Care Cancer VL - 21 UR - https://doi.org/10.1007/s00520-012-1526-4 DO - 10.1007/s00520-012-1526-4 ID - Kiely2013 ER -