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Table 2 Summary of EXCELS measures collected via self-report and medical chart review

From: Rationale and design of extended cancer education for longer term survivors (EXCELS): a randomized control trial of ‘high touch’ vs. ‘high tech’ cancer survivorship self-management tools in primary care

Variable Description C-SHIPa Components Assessment (months)
Baseline 6 12 18
Primary Outcomes: Use of Preventive Health Services
 Cancer recurrence Author adapted scales 5 X X X X
 Preventive Cancer Screening author adapted scales 5 X X X X
 Vaccinations (Influenza, Pneumonia) author adapted scales 5 X X X X
 Well -visits author adapted scales 5 X X X X
Mediators and Moderators
 Cancer Risk Perceptions author adapted scales 2 X X X X
 Cancer Worry (Fear of recurrence) Cancer Worry Scale 1–5 X X X X
 Demographics author adapted scales   X    X
 Family and Provider Care Responsibility author adapted scales   X X X X
 Information Technology Use for Health The eHealth Literacy Scale (eHEALS) 2 X X X  
 Health Literacy Chew Health Literacy   X   X  
 Health-Related Quality of Life Patient-Reported Outcomes Measurement Information System (PROMIS) Global Health Measure 1–5 X X X X
 Patient Activation Patient Activation Measure (PAM) 2–5 X X X X
 Use of PCP and Cancer Treatment Team for Follow-up Care Patient-Centered Medical Home (PCMH) scale 2–3 X    
 Patient Satisfaction Patient Satisfaction Questionnaire Short Form (PSQ-18) 2–3 X X X  
 Perceived Cancer Vulnerability and concern about co-morbid disease Follow-Up Care Use and Health Outcomes of Cancer Survivors (FOCUS) 1 X   X  
 Perceived Utility of Intervention author adapted scales 1–5   X X X
 Technology Ownership & Use Health Information National Trends Survey (HINTS) 2 X X X  
 Treatment late-effects/ Co-morbidity monitoring Charlson Comorbidity Index (CCI)   X X X X
Process Evaluation
 Intervention Use and Satisfaction Author adapted scales 5   X   
  1. aC-SHIP Components: (1) cancer and health-relevant interpretations; (2) beliefs and expectations about cancer treatment and disease outcomes, as well as beliefs about one’s own self-efficacy in dealing with health related challenges; (3) cancer and health relevant goals and values; (4) cancer and health-relevant affective and emotional states; and (5) self-regulatory competencies