Table 2 Summary of EXCELS measures collected via self-report and medical chart review
Variable | Description | C-SHIPa Components | Assessment (months) | |||
|---|---|---|---|---|---|---|
Baseline | 6 | 12 | 18 | |||
Primary Outcomes: Use of Preventive Health Services | ||||||
Cancer recurrence | Author adapted scales | 5 | X | X | X | X |
Preventive Cancer Screening | author adapted scales | 5 | X | X | X | X |
Vaccinations (Influenza, Pneumonia) | author adapted scales | 5 | X | X | X | X |
Well -visits | author adapted scales | 5 | X | X | X | X |
Mediators and Moderators | ||||||
Cancer Risk Perceptions | author adapted scales | 2 | X | X | X | X |
Cancer Worry (Fear of recurrence) | Cancer Worry Scale | 1–5 | X | X | X | X |
Demographics | author adapted scales | X | X | |||
Family and Provider Care Responsibility | author adapted scales | X | X | X | X | |
Information Technology Use for Health | The eHealth Literacy Scale (eHEALS) | 2 | X | X | X | |
Health Literacy | Chew Health Literacy | X | X | |||
Health-Related Quality of Life | Patient-Reported Outcomes Measurement Information System (PROMIS) Global Health Measure | 1–5 | X | X | X | X |
Patient Activation | Patient Activation Measure (PAM) | 2–5 | X | X | X | X |
Use of PCP and Cancer Treatment Team for Follow-up Care | Patient-Centered Medical Home (PCMH) scale | 2–3 | X | |||
Patient Satisfaction | Patient Satisfaction Questionnaire Short Form (PSQ-18) | 2–3 | X | X | X | |
Perceived Cancer Vulnerability and concern about co-morbid disease | Follow-Up Care Use and Health Outcomes of Cancer Survivors (FOCUS) | 1 | X | X | ||
Perceived Utility of Intervention | author adapted scales | 1–5 | X | X | X | |
Technology Ownership & Use | Health Information National Trends Survey (HINTS) | 2 | X | X | X | |
Treatment late-effects/ Co-morbidity monitoring | Charlson Comorbidity Index (CCI) | X | X | X | X | |
Process Evaluation | ||||||
Intervention Use and Satisfaction | Author adapted scales | 5 | X | |||