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Table 2 List of Treatment Attributes

From: Treatment preferences of patients with relapsed and refractory multiple myeloma: a qualitative study

Feature

Description

Higher priority

 Life expectancy

The amount that a treatment prolongs life (or not)

 Physical side effects

Does not increase common side effects such as fatigue, digestive problems, nausea or neutropenia

 Cognitive side effects (‘Chemo brain’)

Does not contribute to memory or concentration problems

 Financial impact

How the costs of treatment are covered (e.g. by government, insurance etc.)

Mixed priority

 Limited steroid use

Drug treatment does not require dexamethasone (‘dex’) or very low doses of dex are administered

 Relation to other treatments

Does not preclude other treatments or make other treatments ineffective

Lower priority

 Mode of administration

How treatment is given, for example orally (taken at home), or IV treatment at the hospital

 Treatment intervals

Allows for “down-time” or “off-treatment” breaks during treatment periods

 Psychological/emotional side effects

Treatment side effects are predictable so that you are able to make plans.

 Sleep and mood side effects

Does not increase sleep disturbances and mood swings

Lowest priority

aAccessibility

The treatment and the healthcare provider are accessibly located

aDistribution

Smooth and consistent access to medications (financial and logistic)

  1. aThese treatment features were added by focus group participants