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Table 1 Comparison of Demographic and Clinical Characteristics between Participants with Carcinoid Syndrome Responding to Survey at Time Point 1 vs. both Time Point 1 and Time Point 2

From: Assessment of change in quality of life, carcinoid syndrome symptoms and healthcare resource utilization in patients with carcinoid syndrome

 

All Patients

 

Only Time Point 1

Both Time Point 1 and Time Point 2

p-valuea

 

(N = 117)

  

(N = 28)

  

(N = 89)

  

Demographic characteristics

Male, N (%)

27

(23)

 

5

(18)

 

22

(25)

 

0.452

Age (years), mean [median] (SD)

58.0

[57.0]

(9.8)

54.1

[56.5]

(11.1)

59.2

[59.0]

(9.1)

0.099

Age group, N (%)

         

0.153

 18–34 years

3

(3)

 

2

(7)

 

1

(1)

  

 35–44 years

5

(4)

 

2

(7)

 

3

(3)

  

 45–54 years

31

(26)

 

6

(21)

 

25

(28)

  

 55–64 years

46

(39)

 

14

(50)

 

32

(36)

  

 65–74 years

27

(23)

 

4

(14)

 

23

(26)

  

 75+ years

5

(4)

 

0

(0)

 

5

(6)

  

Race, N (%)b

 Caucasian

106

(91)

 

23

(82)

 

83

(93)

 

0.130

 Black or African American

6

(5)

 

3

(11)

 

3

(3)

 

0.148

 Hispanic or Latino

5

(4)

 

2

(7)

 

3

(3)

 

0.592

 Asian/Pacific Islander

0

(0)

 

0

(0)

 

0

(0)

 

–

 Native American/American Indian

1

(1)

 

1

(4)

 

0

(0)

 

0.239

 Other

3

(3)

 

2

(7)

 

1

(1)

 

0.142

 Region of residence, N (%)

         

0.586

 Northeast

21

(18)

 

4

(14)

 

17

(19)

  

 South

41

(35)

 

11

(39)

 

30

(34)

  

 Midwest

30

(26)

 

9

(32)

 

21

(24)

  

 West

25

(21)

 

4

(14)

 

21

(24)

  

Clinical characteristics

Primary site of NET, N (%)b

 Lung

11

(9)

 

0

(0)

 

11

(12)

 

0.064

 Stomach

11

(9)

 

5

(18)

 

6

(7)

 

0.130

 Duodenum

10

(8)

 

1

(4)

 

9

(10)

 

0.448

 Jejunum

6

(5)

 

0

(0)

 

6

(7)

 

0.333

 Ileum

55

(47)

 

14

(50)

 

41

(46)

 

0.716

 Appendix

12

(10)

 

4

(14)

 

8

(9)

 

0.478

 Colon

10

(8)

 

2

(7)

 

8

(9)

 

1.000

 Rectum

0

(0)

 

0

(0)

 

0

(0)

 

–

 Other primary sitec

30

(26)

 

5

(18)

 

25

(28)

 

0.279

Time since NET diagnosis (years), mean [median] (SD)

8.3

[6.7]

(6.0)

7.5

[6.6]

(5.8)

8.6

[6.8]

(6.0)

0.338

Time since CS diagnosis (years), mean [median] (SD)

7.1

[4.8]

(5.5)

6.1

[4.3]

(5.5)

7.4

[5.1]

(5.6)

0.220

CS symptoms experienced after NET diagnosis, N (%)

 Cyanosis

14

(12)

 

5

(18)

 

9

(10)

 

0.318

 Carcinoid diarrhea

114

(97)

 

28

(100)

 

86

(97)

 

1.000

 Carcinoid heart

15

(13)

 

3

(11)

 

12

(14)

 

1.000

 Flushing

106

(91)

 

26

(93)

 

80

(90)

 

1.000

 Peripheral edema

54

(46)

 

15

(54)

 

39

(44)

 

0.367

 Wheezing

48

(41)

 

11

(39)

 

37

(4)

 

0.830

Current activity level, N (%)

         

0.285

 I have normal activity, without symptoms

11

(9)

 

5

(18)

 

6

(7)

  

 Have symptoms, but do not require bed rest during waking day

70

(60)

 

14

(50)

 

56

(63)

  

 Require bed rest during < 50% of waking day

30

(26)

 

8

(29)

 

22

(25)

  

 Require bed rest during 50% + of waking day

6

(5)

 

1

(4)

 

5

(6)

  

 Unable to get out of bed

0

(0)

 

0

(0)

 

0

(0)

  
  1. Abbreviations: NET neuroendocrine tumor, SD standard deviation; T1 time point 1, T2 time point 2
  2. ap-values were calculated to compare characteristics between patients completing survey at T1 only vs. those completing survey at T1 and T2
  3. bRespondents were allowed to select multiple responses, so counts and percentages may not sum to the total N or 100%
  4. cOther primary NET sites include breast, cecum, intestines, liver, mesentery, pancreas, small intestine, ureter, and unknown
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BMC Cancer

ISSN: 1471-2407

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