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Table 6 This table lists the commonly made initial diagnosis in primary and secondary care when respondents attended with the symptoms related to their NET

From: Delays and routes to diagnosis of neuroendocrine tumours

Potential cause Primary Care Secondary Care
Pancreas Small Bowel Grand Total Pancreas Small Bowel Grand Total
IBS 16% 29% 24% 5% 12% 9%
Dyspepsia 9% 16% 13% 3% 3% 3%
Depression 5% 3% 4% 2% 1% 1%
UTI 5% 3% 4% 0% 0% 0%
Constipation 3% 5% 4% 2% 1% 1%
Gall Stones 8% 12% 10% 3% 5% 4%
Menopause 2% 11% 7% 0% 3% 2%
Chest infection 2% 2% 2% 0% 0% 0%
Haemorrhoids 0% 0% 0% 0% 0% 0%
Kidney stones 5% 3% 4% 3% 1% 2%
Anaemia 5% 5% 5% 2% 0% 1%
Crohn’s 0% 2% 1% 2% 1% 1%
NET 0% 2% 1% 20% 22% 21%
Ulcerative colitis 5% 4% 4% 0% 1% 1%
Cancer 3% 4% 4% 17% 14% 15%
They were not sure 9% 19% 15% 6% 15% 12%
Not sure 8% 8% 8% 6% 5% 6%
Other 22% 25% 24% 23% 23% 23%
Respondents 64 99 163 64 99 163
  1. The percentage is derived from the initial diagnosis given to patients by the total number of patients. For example 10 of 64 patients (16%) with pNETs were initially given a diagnosis of IBS. Abbreviations: IBS irritable bowel syndrome, UTI urinary tract infection, NET neuroendocrine tumour