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Table 2 Basic features of data collection in 35 European countries

From: Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries

  Year est. Mandatory Consent Form Verbal other Data Completeness (%) Year Histo only Clinical C-R DCO
Albania 2011 No No     90% 2013 No Yes Yes No
Austria 1969 Yes No     Not available N/A Yes    
Belgium 2006 Yes No     90–94 2013 No Yes Yes  
B & H 2004 Yes No     59 2011 No Yes Yes Yes
Bulgaria 1952 Yes No     70–79 2011 Yes    
Croatia 1959 Yes No     80–89 2013 Yes    
Czech Rep 1977 Yes No     95–100 2013 No Yes Yes No
Denmark 2000~ Yes No     95–100 2013 No Yes Yes Yes*
Eng & Wales 2003~ Yes No     95–100 2013 No Yes Yes No*
Estonia 1953 Yes Yes Yes    95–100 2011 No No Yes Yes
Finland 1953 Yes No     95–100 2012 No Yes Yes Yes
France 1975 No No     < 50% 2013 No* No Yes No
Germany 1929 Yes Yes Yes    70–79 2013 No Yes Yes Yes
Greece 2013 Yes No     < 50% 2013 No Yes Yes Yes
Hungary 1970~ Yes No     70–79 2013 Yes    
Iceland 1955 Yes No     95–100 2013 No Yes-rarely Yes Yes-rarely
Rep. Ireland 1991 No No     90–94 2012 No No Yes Yes
Italy 1996 No Yes   Yes   51 2013 Yes    
Lithuania 1984 Yes No     95–100 2013 No Yes-rarely Yes Yes-rarely
Luxembourg 2013 Yes Yes    implicit Not available N/A No Yes Yes Yes
Malta 1957 Yes No     95–100 2013 No Yes Yes Yes-rarely
Moldova 1983 Yes Yes Yes    50–59 2012 Yes    
Netherlands 1989 No Yes    implicit 95–97 2013 No Yes Yes No
Norway 1953 Yes No     97 2009 No Yes Yes Yes
Poland 1952 Yes No     80–89 2012 Yes    
Portugal 1988 Yes No     60–69 2011 No Yes Yes Yes
Romania 1981 Yes No     < 66% 2011 No Yes Yes Yes
Scotland 1958 Yes No     95–100 2013 No Yes Yes Yes
Rep. Serbia 1990 Yes No     60–69 2013 No No Yes Yes (PM)
Slovakia 1952 Yes No     70–79 2008 No No Yes Yes
Slovenia 1950 Yes No     90–94 2010 No Yes Yes Yes
Spain 1960 No Yes Yes    Not available N/A No No Yes No
Sweden 1958 Yes No     95–100 2013 No No Yes No
Switzerland 1969 No No     95–100 2013 No Yes Yes Yes
Turkey 1993 No No     < 50% 2009 No Yes Yes No
  1. Countries not in bold do not have a national dataset. B&H Bosnia and Herzegovina. DCO death certificate only. N/A not applicable. PM post-mortem only. Year est.; year that registry established
  2. ~ = Lung cancer specific data collection established. Histo only; only those patients with a histological or cytological diagnosis are recorded in the dataset. If no, then are cases confirmed on clinical grounds alone, or clinico-radiological grounds (C-R), and finally are cases included if the diagnosis of lung cancer is based on the death certificate only (DCO). Denmark; DCO*; accepted as diagnosis in National Cancer Registry, not in the National Lung Cancer Registry. England and Wales; DCO*; accepted as diagnosis in the National Cancer Registry not in the National Lung Cancer Audit. France; The Epithor surgical database would be histological confirmed cases only, the National Cancer Registry is not