Table 5 Summary of satisfaction with help received for supportive care needs
Satisfaction | Yes n (%) | No n (%) | Missing |
|---|---|---|---|
Health System and Information Needs Domain | |||
 Being given written information about the important aspects of your care | 98 (37) | 164 (63) | 78 |
 Being given information (written diagrams, drawings) about aspects of managing your illness and side-effects at home | 99 (38) | 162 (62) | 81 |
 Being given explanation of those tests for which you would like explanations | 92 (34) | 176 (66) | 74 |
 Being adequately informed about the benefits and side-effects of treatments before you choose to have them | 83 (31) | 183 (69) | 76 |
 Being informed about your test results as soon as feasible | 79 (29) | 193 (71) | 69 |
 Being informed about cancer which is under control or diminishing (that is, remission) | 84 (32) | 179 (68) | 78 |
 Being informed about things you can do to help yourself to get well | 119 (47) | 136 (53) | 85 |
 Having access to professional counselling (e.g., psychologist, social worker, counsellor, nurse specialist) if you, family or friends need it | 137 (53) | 121 (47) | 84 |
 To be given information about sexual relationships | 147 (65) | 79 (35) | 117 |
 Being treated like a person not just another case | 88 (35) | 164 (65) | 91 |
 Being treated in a hospital or clinic that is as physically pleasant as possible | 76 (29) | 184 (71) | 82 |
 Having one member of hospital staff with whom you can talk about all aspects of your condition, treatment and follow-up | 113 (44) | 141 (56) | 88 |
Psychological Needs Domain | |||
 Anxiety | 190 (75) | 65 (25) | 88 |
 Feeling down or depressed | 201 (79) | 52 (21) | 90 |
 Feelings of sadness | 185 (76) | 58 (24) | 100 |
 Fears about the cancer spreading | 165 (61) | 104 (39) | 74 |
 Worry that the results of treatment are beyond your control | 178 (70) | 75 (30) | 90 |
 Accepting changes in your appearance | 188 (81) | 44 (19) | 111 |
 Uncertainty about the future | 182 (74) | 63 (26) | 97 |
 Learning to fell in control of your situations | 191 (77) | 56 (23) | 96 |
 Keeping a positive outlook | 177 (74) | 63 (26) | 103 |
 Feelings about death or dying | 194 (83) | 40 (17) | 109 |
 Concerns about the worries of those close to you | 201 (83) | 42 (17) | 100 |
Sexuality Needs Domain | |||
 Changes in your ability to have sexual intercourse | 196 (80) | 50 (20) | 96 |
 Changes in sexual feelings | 186 (79) | 49 (21) | 107 |
 Changes in your sexual relationships | 190 (83) | 40 (17) | 112 |
 Concerns about fulfilling your role as a partner | 201 (87) | 29 (13) | 113 |
 To be given information about sexual relationships | 147 (65) | 79 (35) | 117 |
Physical and Daily Living Needs Domain | |||
 Pain | 157 (57) | 120 (43) | 66 |
 Lack of energy/tiredness | 211 (80) | 52 (20) | 80 |
 Feeling unwell a lot of the time | 193 (77) | 58 (23) | 92 |
 Work around the house | 204 (86) | 33 (14) | 105 |
 Not being able to do the things you used to do | 198 (81) | 45 (19) | 100 |
Patient Care and Support Needs Domain | |||
 More choice about which cancer specialists you see | 183 (81) | 44 (19) | 116 |
 More choice about which hospital you attend | 180 (81) | 42 (19) | 121 |
 Reassurance by health professionals that the way you feel is normal | 150 (61) | 96 (39) | 96 |
 Hospital staff attending to your physical needs | 96 (37) | 164 (63) | 83 |
 Hospital staff acknowledging, and showing sensitivity to, your feelings and emotional needs | 95 (36) | 166 (64) | 80 |