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Table 2 Five prevalent themes influencing AYA decision making were identified in ≥90% of participants

From: Perceptions of and decision making about clinical trials in adolescent and young adults with Cancer: a qualitative analysis

Theme Classification

Theme

Example

Positive

Severity of illness/urgency (95%)

“I brought up side effects a few times, but if there weren’t really any options or the current options weren’t working and my team was at a loss of what to do. I don’t see that I would have a choice.”

Negative

Concern about side effects (90%)

“Yes, it would. Permanent side effects? No thanks. The side effects I’ve already been having with chemo are harsh enough... definitely side effects would be huge thing

Neutral

Recruitment method (100%)

“I was approached very nicely and academically and they gave me the right information. I was able to meet a lot of different professionals working on the trial and felt confident because I got a lot of different perspectives by different teams.”

Additional information (95%)

“I like that I was able to talk about it with my doctor… I know ultimately I make most of the decisions for myself but I hold him in very high regard.”

Opinion of others (100%)

“My friends and family are very informed and aware of what is going on with me. Always want to come to the hospital and they all do their own research…It’s great, I am very supported.”