Domain | Measures |
Baseline (T0) |
Follow-up 1 (T1) (3 months post-baseline) |
Follow-up 2 (T2) (12 months post-baseline) |
---|---|---|---|---|
Demographics | ||||
Age, gender, marital status, education level, occupation etc | Demographic items | x | ||
Views and attitudes | ||||
Perceived importance of GGS | Adapted from Hay et al. [54] | x | ||
Knowledge | Study-developed | x | ||
Preferences for who tested | Ballinger et al. [55] | x | ||
Value of GGS | Adapted from previous studies [41, 56, 57] | x | ||
Result return preferences | Ballinger et al. [55] | x | ||
Perceived benefits and drawbacks of GGS | Adapted from Jamal et al. [61] | x | x | |
Anticipated behavioural change | Study-developed | x | ||
Psychological factors | ||||
Coping with uncertainty | Kasparian et al. [60] | x | ||
Self-efficacy | Adapted from Rosenberg et al. [59] | x | ||
Perceived susceptibility | Kasparian et al. [60] | x | x | x |
Psychological outcomes | ||||
Coping with waiting for GGS results | Multidimensional impact of cancer risk assessment (adapted) [64] | x | x | |
Fear of cancer (recurrence) | Concerns about Recurrence Questionnaire [67] | x | x | x |
Cancer specific anxiety | Impact of events scale [62] | x | x | |
Anxiety and depression | Hospital anxiety and depression scale [63] | x | x | |
Hope | Herth Hope Index [65] | x | x | |
Decisional outcomes | ||||
Decisional satisfaction | Satisfaction with Decision Scale [68] | x | x | x |
Decisional regret | Decision Regret Scale [66] | x | x |