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Table 1 Survey measures

From: The PiGeOn project: protocol for a longitudinal study examining psychosocial, behavioural and ethical issues and outcomes in cancer tumour genomic profiling

Domain

Measures

Baseline (T0)

Follow-up 1 (T1) (within 4 weeks of return of results, ~  2–3 months)

Follow-up 2 (T2) (2 months post T1)

Demographics

    

 Age, gender, marital status, education level, occupation etc

Demographic items

X

  

Views and attitudes

    

 Value of TGP

Adapted from previous studies [15,16,17]

X

  

 Perceived benefits and drawbacks of TGP

Adapted from Jamal et al. [18]

X

X

 

 Result return preferences

Adapted from Tabor et al. [19]

X

  

 Knowledge

Study-developed

X

  

 Perceived importance of TGP

Adapted from Hay et al. [20]

X

  

Psychological predictors

    

 Coping with uncertainty

Kasparian et al. [21]

X

  

 Self-efficacy

Adapted from Rosenberg et al. [22]

X

  

 Perceived susceptibility

Adapted from

Kasparian et al. [21]

X

X

X

Psychological outcomes

    

 Coping with TGP results

Multidimensional impact of cancer risk assessment [23]

 

X

 

 Fear of cancer progression

Concerns about Recurrence Questionnaire [24]

X

X

X

 Cancer -specific anxiety

Impact of events scale [25]

 

X

X

 Anxiety and depression

Hospital anxiety and depression scale [26]

 

X

X

 Hope

Herth Hope Index [27]

 

X

X

Decisional outcomes

    

 Decisional conflict

Decisional conflict scale [28]

 

X

 

 Decisional regret regarding  personalised treatment

Decision regret scale [29]

  

X

 Decisional satisfaction

Satisfaction with Decision Scale [30]

X

X

 
  1. TGP, Tumour genomic profiling