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Table 2 Positive Predictive Values (PPV) of self-reported breast cancer characteristics, Sister Study 2003-2014a

From: Validity of self-reported breast cancer characteristics in a nationwide cohort of women with a family history of breast cancer

Breast cancer characteristic Medical record (%)b Self-reportb PPV (%)
Invasiveness
 Invasive 1533 (76) 1191 (63) 99.3
 In situ 472 (24) 711 (37) 64.2
 Unknown 3 106  
Locationc
 Ductal (any) 1804 (90) 1562 (88) 98.9
 Lobular only 190 (10) 215 (12) 75.7
 Unknown 9 226  
Stage
 0 471 (24) 563 (32) 71.1
 I 1035 (52) 712 (41) 92.1
 II 380 (19) 352 (20) 67.9
 III/IV 117 (6) 128 (7) 71.1
 Unknown 5 253  
Among medically confirmed invasive cases:d
 ER
  Positive 1277 (85) 1104 (83) 99.1
  Negative 217 (15) 234 (17) 83.0
  Unknown 39 195  
 PR
  Positive 1081 (73) 643 (62) 98.9
  Negative 404 (27) 402 (38) 71.6
  Unknown 48 488  
 HER2
  Positive 167 (12) 232 (22) 66.1
  Negative 1271 (88) 845 (78) 99.1
  Unknown 95 456  
  1. Abbreviation: ER estrogen receptor, PR progesterone receptor, HER2 human epidermal growth factor receptor 2, PPV positive predictive value
  2. aExcludes 43 who did not complete the questionnaire about breast cancer characteristics and 3 who reported on a different breast cancer event than the one abstracted from her medical records
  3. bData are reported as number (percentage) of women. Totals may not always equal 100% because of rounding
  4. cExcludes 5 cases that are not of ductal or lobular origin (phyllodes tumors)
  5. dER, PR, and HER2 analyses are restricted to 1533 cases confirmed as invasive breast cancer by medical records