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Table 1 Overview and categorization of instruments applied in the questionnaire

From: Long-term effects and psychological adjustment: study protocol of a large register-based study on quality of life among survivors of hematological malignancies

Domain Issue Measures
Patient characteristics Sociodemographic Internally developed
Medical Internally developed
Quality of life
 Physical Symptoms; physical and cognitive functioning EORTC-QLQ-C30 [37]
Cancer-related fatigue BFI [55]
Cognitive functioning AFI [68]
Comorbidity Comorbidity Index [76]
Care level and disability internally developed
Late/long-term effects internally developed
 Psychological Emotional functioning EORTC-QLQ-C30 [37]
General satisfaction FLZM [47]
Depressive symptoms PHQ-9 [50]
Anxiety symptoms GAD-7 [50]
General distress NCCN Distress [52] Thermometer [52]
Fear of progression FoP-Q [54]
Late/long-term effects internally developed
 Social Role and social functioning; financial difficulties EORTC-QLQ-C30 [37]
Social and medical care need SCNS-SF34 [70]
Social support F-SozU [44]
Use of/satisfaction with social care internally developed
Use of/satisfaction with medical care internally developed
Employment and work ability/conditions WAI [72]; internally developed
Partnership, sexuality and fertility PFB-K [45]; Geue et al. [75]; internally developed
Late/long-term effects internally developed
Premorbid/Personality Traits Affectivity PANAS [48]
Coping styles UCL-SF [57]
Psychological flexibility AAQ-II [60]
Illness centrality Wiebe et al. [63]; Helgeson et al. [63, 64]
Changes in Self Concept internally developed
Health locus of control MHLC [65]
Health behavior FEG [66]; report of Health Monitoring [67]; internally developed
  1. Note: EORTC-QLQ-C30 and questions on late/long-term effects are assigned to all QoL domains due to multidimensionality/open response format