Table 1 Assessment schedule for the AYA-LE study for both survey time points
Topic | Measurement instruments at baseline and follow-up |
|---|---|
Life situation | |
Psychological distress | Hospital Anxiety and Depression Scale (HADS) NCCN Distress thermometer |
Quality of life (QoL) | Questions on life satisfaction (FLZ-M) The European Organization for Research and Treatment of Cancer Quality of Life Questionnaire-Core 30 (EORTC QLQ-C30) |
Fatique | The European Organization for Research and Treatment of Cancer Quality of Life Questionnaire- Cancer Related Fatique (EORTC QLQ-FA12) |
Sexuality | Questionnaire on Life Satisfaction (FLZ, scale partnership/sexuality) |
Employment and work ability | self-developed |
Health behavior | Items based on Questionnaire of Multiple Health Behavior (MHB-39) |
Self-regulation | Global-Motivation Scale (GMS-18D) Perceived Adjustment to Chronic Illness Scale (PACIS) |
Psychosocial care | |
Supportive care needs | Supportive Care Needs Survey Questionnaire (SCNS-SF34-G) |
Psychosocial support | Illness-specific Social Support Scale Short Version-8 (ISSS-8) |
Preferences and evaluation of psychosocial care | self-developed |
Other | |
Socio-demographic variables | date of birth, gender, nationality, marital status, partnership, having children, housing situation, net monthly household income, highest educational degree, state of employment, religion |
Medical variables | diagnosis, metastasis, recurrence, type of medical treatment, co-morbid diseases, participation in vocational rehabilitation program |