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Table 1 Assessment schedule for the AYA-LE study for both survey time points

From: Life situation and psychosocial care of adolescent and young adult (AYA) cancer patients – study protocol of a 12-month prospective longitudinal study

Topic Measurement instruments at baseline and follow-up
Life situation
Psychological distress Hospital Anxiety and Depression Scale (HADS) NCCN Distress thermometer
Quality of life (QoL) Questions on life satisfaction (FLZ-M) The European Organization for Research and Treatment of Cancer Quality of Life Questionnaire-Core 30 (EORTC QLQ-C30)
Fatique The European Organization for Research and Treatment of Cancer Quality of Life Questionnaire- Cancer Related Fatique (EORTC QLQ-FA12)
Sexuality Questionnaire on Life Satisfaction (FLZ, scale partnership/sexuality)
Employment and work ability self-developed
Health behavior Items based on Questionnaire of Multiple Health Behavior (MHB-39)
Self-regulation Global-Motivation Scale (GMS-18D) Perceived Adjustment to Chronic Illness Scale (PACIS)
Psychosocial care
Supportive care needs Supportive Care Needs Survey Questionnaire (SCNS-SF34-G)
Psychosocial support Illness-specific Social Support Scale Short Version-8 (ISSS-8)
Preferences and evaluation of psychosocial care self-developed
Other
Socio-demographic variables date of birth, gender, nationality, marital status, partnership, having children, housing situation, net monthly household income, highest educational degree, state of employment, religion
Medical variables diagnosis, metastasis, recurrence, type of medical treatment, co-morbid diseases, participation in vocational rehabilitation program