Table 1 Measurements and time points of the nurse intervention project

Demographic & medical characteristics

Descriptive of the population

X

X

X

Multiple answers

EORTC QLQ-C30

Functional scales: physical, role, emotional, social, and cognitive functioning (15 items)

X

X

X

4 point Likert scale

Range 15–60

Symptom scales: fatigue, pain, nausea/vomiting (7 items)

X

X

X

Range 7–28

Single symptom items (6 items)

X

X

X

Range 6–24

Global Health and global quality of life* (2 items)

X

X

X

7 point linear analogue scale

Range 2–14

EORTC QLQ- BR23

Functional scales: body image, sexual functioning, sexual enjoyment, future perspective (8 items)

X

X

X

4 point Likert scale

Range 8–32

Symptoms scales: arm symptoms, breast symptoms, systemic therapy side effects, upset by hair loss (15 items)

X

X

X

Range 15-60

DT

General distress

X

X¹

X

11 point visual analogue

Scale: range 0–10

Problem list (47 items)

X

X¹

X

Yes/no

Question: wish for referral (1 item)

X

X¹

X

Yes/no/maybe

HADS

Emotional distress (14 items)

Subscales:

Anxiety (7 items)

Depression (7 items)

X

X

X

4 point Likert scale

Range 0–42 (total scale)

Range 0–21

Range 0-21

IES

Coping with the cancer (15 items)

Subscales:

Intrusion (7 items)

Avoidance (8 items)

X

X

X

4 point scale

Range 0–75 (total score)

Range 0–35

Range 0-40

ICQ

Illness perceptions (18 items)

Subscales:

Helplessness (6 items)

Acceptance (6 items)

Perceived benefits (6 items)

X

X

X

4 point Likert scale

Range 6–24

Range 6–24

Range 6-24

Diary

Health care use and work absence

X

X

Yes/no, frequency and reason

EQ-6D

Quality of life in relation to economic evaluations (1 item)

X

X

X

Visual Analogue

Scale: range 0–100

Dimensions: mobility, self-care, usual activities, pain/discomfort, anxiety/depression and cognition (6 items)

X

X

X

Range 1–3 for each dimension.