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Table 1 Characteristics of NCPES 2012–13 respondents and the hospital trusts they attended

From: Exploring research participation among cancer patients: analysis of a national survey and an in-depth interview study

Patient characteristics

Gender

n

%

Long-standing conditions a

n

%

Male

31,376

46.9

None

38,982

58.2

Female

35,577

53.1

Deafness/hearing impairment

6,839

10.2

   

Blindness/partially sighted

1,494

2.2

Age group

n

%

Physical condition

8,884

13.3

 16–25

257

0.4

Learning disability

280

0.4

 26–35

890

1.3

Mental health condition

1,319

2.0

 36–50

6,086

9.1

Long-standing illness b

8,706

13.0

 51–65

20,045

29.9

   

 66–75

22,034

32.9

Employment status

n

%

 76+

14,951

22.3

 Full-time

10,710

16.0

   

 Part-time

5,792

8.7

Ethnicity

n

%

 Homemaker

1,771

2.7

 White

61,991

92.6

 Student

178

0.3

 Mixed

316

0.5

 Retired

40,195

60.0

 Asian/Asian  British

1,155

1.7

 Unemployed – seeking work

459

0.7

 Black/Black  British

894

1.3

 Unemployed – unable to work

3,725

5.6

 Other

280

0.4

 Other

1,391

2.1

Clinical characteristics

 Tumour group

n

%

Patient status

n

%

 Brain/CNS

711

1.1

 Day case

43,272

64.6

 Breast

13,763

20.4

 Inpatient

23,681

35.4

 Colorectal/ Lower GI

8,636

12.9

   

 Gynaecological

3,772

5.6

Time since first treatment

n

%

 Haematological

11,321

16.9

 <1 year

42,796

63.9

 Head and Neck

2,388

3.6

 1–5 years

16,164

24.1

 Lung

4,886

7.3

 >5 years

5,511

8.2

 Other

2,675

4.0

   

 Prostate

5,418

8.1

Response to treatment c

n

%

 Sarcoma

711

1.1

 Full response (no signs/symptoms)

23,926

35.7

 Skin

1,785

2.7

 Treated, but cancer still present

16,800

25.1

 Upper GI

4,186

6.3

 Original cancer has come back

3,500

5.2

 Urological

6,803

10.2

 Original cancer treated, have new cancer

1,890

2.8

   

 Have not received treatment yet

1,098

1.6

Trust characteristics

Trust type

n

%

Foundation status

n

%

 Small acute

5,642

8.4

No

29,256

43.7

 Medium acute

15,015

22.4

Yes

37,697

56.3

 Large acute

23,510

35.1

   

 Specialist

3,317

5.0

Location

n

%

 Teaching

19,469

29.1

London

9,242

13.8

   

Outside London

57,711

86.2

  1. Total number of respondents = 66,953. Age was unknown for 4.0 % of respondents, ethnicity was unknown for 3.4 %, long-standing conditions status for 8.5 %, employment status for 4.1 %, time since first treatment for 3.7 % and response to treatment for 8.9 %
  2. GI = gastrointestinal; CNS = central nervous system
  3. a 6.5 % of patients (n = 4,379) had >1 long-standing condition, therefore the column total exceeds 100 %
  4. b Such as (but not limited to) HIV, diabetes, chronic heart disease or epilepsy
  5. c 20.6 % of respondents were “uncertain about what was happening with their cancer”