Table 1 Web-based information tool content headings
Domain | Content |
|---|---|
1. Introduction | 1.1 Introduction |
2. My cancer and its causes | 2.1a Acute myeloid leukaemia |
| Â | 2.1b Acute lymphoblastic leukaemia |
|  | 2.1c Burkitt’s lymphoma |
| Â | 2.1d Lymphoblastic lymphoma (B or T cell) |
3. What are my treatment options? | 3.1 Chemotherapy |
| Â | 3.1.1 What does chemotherapy involve? |
| Â | 3.1.1.1 What tests will I require before and during treatment? |
| Â | 3.1.1.2 How is chemotherapy given? |
| Â | 3.1.1.2.1 Cannula |
| Â | 3.1.1.2.2 Central lines |
| Â | 3.1.1.2.3 PICC lines |
| Â | 3.1.1.2.4 Lumbar puncture |
| Â | 3.1.1.3 How long does chemotherapy take? |
| Â | 3.1.1.4 Where will I have chemotherapy? |
| Â | 3.1.1.5 Who will be involved in my care? |
| Â | 3.1.1.6 What are the safety precautions? |
| Â | 3.1.1.7 How and when will I know if the chemotherapy has worked? |
| Â | 3.1.2 What are possible side effects? |
| Â | 3.1.2.1 Effects on the blood and immune system |
| Â | 3.1.2.1.1 Avoiding infection |
| Â | 3.1.2.2 Hair loss or scalp problems |
| Â | 3.1.2.3 Loss of appetite, nausea or vomiting |
| Â | 3.1.2.4 Constipation or diarrhoea |
| Â | 3.1.2.5 Fatigue |
| Â | 3.1.2.6 Itchy skin and other skin problems |
| Â | 3.1.2.7 Mouth sores |
| Â | 3.1.2.8 Infertility |
| Â | 3.1.2.9 When to contact your doctor |
| Â | 3.1.3 What happens after chemotherapy? |
| Â | 3.1.3.1 What happens when I go home? |
| Â | 3.1.3.2 What are the chances of the cancer coming back? |
| Â | 3.1.3.3 When should I seek medical assistance? |
| Â | 3.2 Bone marrow transplant |
| Â | 3.2.1 What is bone marrow? |
| Â | 3.2.2 What is a bone marrow transplant? |
| Â | 3.2.3 Is a bone marrow transplant right for me? |
| Â | 3.2.4 Types of bone marrow transplants |
| Â | 3.3 Palliative care |
| Â | 3.3.1 What does palliative care involve? |
| Â | 3.3.1.1 How long does palliative care take? |
| Â | 3.3.1.2 Where would I have palliative care? |
| Â | 3.3.1.3 Who will be involved in my care? |
| Â | 3.3.1.4 Can my carer access respite care? |
| Â | 3.3.2 Symptom management |
| Â | 3.4 No treatment |
| Â | 3.5 Clinical trials |
| Â | 3.5.1 What is a clinical trial? |
| Â | 3.6 Getting a second opinion |
4. Complementary and alternative medicine (CAM) | 4.1 What is CAM? |
| Â | 4.1.1 What is scientific evidence? |
| Â | 4.1.2 Complementary therapies |
| Â | 4.1.3 Alternative therapies |
| Â | 4.2 Why do some people with cancer choose CAM? |
| Â | 4.3 What types of CAM are there? |
| Â | 4.4 Important safety information |
| Â | 4.5 What should I ask my doctor about CAM? |
| Â | 4.6 How do I decide? |
| Â | 4.7 Costs |
| Â | 4.8 Finding a complementary therapist |
| Â | 4.8.1 Professional associations |
| Â | 4.9 Talking to complementary therapists |
5. Impact of cancer and treatment on my life | 5.1 Family |
| Â | 5.2 Work |
| Â | 5.2.1 Taking time off work |
| Â | 5.2.2 Financial issues |
| Â | 5.3 Education/Studies |
| Â | 5.4 Partner relationships |
| Â | 5.5 Social life |
| Â | 5.6 Body image and sexuality |
| Â | 5.7 Diet |
| Â | 5.7.1 Coping with eating problems and side effects |
| Â | 5.7.2 How to gain weight |
| Â | 5.7.3 Access to a dietitian |
| Â | 5.7.4 Recipes and snacks |
| Â | 5.8 Exercise |
6. What support is available? | 6.1 Emotional support |
| Â | 6.2 Accommodation |
| Â | 6.3 Practical support |
| Â | 6.4 Transport/parking |
| Â | 6.5 Financial assistance |
| Â | 6.6 Support for the family |
| Â | 6.7 Access to wigs |
7. Where can I get further information? | 7.1 Websites |
| Â | 7.2 Telephone helplines |
| Â | 7.3 Clinical cancer nurse |
8. Discussion Forum | 8. Discussion Forum |