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Table 5 Feedback obtained from participants

From: Participation of older newly-diagnosed cancer patients in an observational prospective pilot study: an example of recruitment and retention

Agreement with the statement "Interviews were too long"

Face-to-face interviews N = 84 (%)

Telephone interviews

N = 84 (%)

Strongly disagree

37 (44.0%)

34 (40.5%)

Disagree

41 (48.8%)

45 (53.6%)

No opinion

1 (1.2%)

0

Agree

1 (1.2%)

2 (2.4%)

Strongly agree

4 (4.8%)

3 (3.6%)

Which questions were too difficult or unpleasant?

Number of patients who reported this

Cognitive tests were too easy or irrelevant

6

Gait speed test, felt shy walking in clinic where other people can see the person walk

1

The interview was too easy

2

Most of questions are not relevant as patient did not feel sick, more suited for more sick patients

2

All questions were relevant

3

The questions were okay (not too strenuous)

3

Too much questions

2

The wide variety of questions makes it interesting

1

Which items/topics with regard to health and functional status are missing?

Number of patients who reported this

Living situation (are you happy where you live?)

1

Perceptions of treatment

1

  

Number of patients who reported this

Social support/care received from family and friends

2

Loneliness

1

Which items/topics with regard to health and functional status are missing?

Number of patients who reported this

Physical activity/hobbies (changes in type and amount of activities)

2

Nutritional problems including change in taste

1

Future (life after treatment)

2

Other comments or suggestions with regard to the conduct of this study

Number of patients who reported this

I enjoyed participating in this study

30

Comments with regard to specific hospital services that are lacking

2