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Table 1 Data items registered in the Arkhangelsk Cancer Registry

From: Cancer incidence in Arkhangelskaja Oblast in northwestern Russia. The Arkhangelsk Cancer Registry

Data registered

Comments

 

Number at registration card

  

Surname, given name, patronymic

In separate fields from 1995

 

Gender

 

C

Residence (urban or rural)

 

C

Date of birth

For the period 1995–99 the year was registered

 

Rajon (borough) of residence

 

C

Home address

From 2000 also home oblast included

 

Occupation

 

C

Date when registered as sick

(by general health system)

 

Result of treatment / patient's status

Last known, at the end of the year.

C

Date of last status

  

Clinical health group at the time of registration

e.g. Will be cured, etc. From 1995

C

Clinical health group at the end of year

From 1995

C

Descriptive diagnosis

  

Cancer diagnosis 1

Only for the years 93–94

C

Diagnosis by ICD-9 code 1

Only for the years 1993–99

C

Diagnosis by ICD-10 code 1

Only for the years 1993–94, 2000-

C

How the tumour was detected

Registered if method was autopsy or only obtained from death certificate

C

Stage

 

C

TNM

From 1995

 

Method of verification of diagnosis

Morphologic, cytologic, X-rays, endoscopy, isotopic, ultra sound, computer tomography, operation, only clinical, or unknown

C

Date of diagnosis

From 1995

 

Reason for late diagnosis

From 2000

C

Morphological code

 

C

Main cancer site (when more than one site)

For internal use clinically

 

Histological structure of tumour

Classification for internal use. From 1995

C

Synchronic tumour

Yes/no. Only in period 1995–99

 

Localisation of cancer (side of body)

Right/left

C

Information about treatment

For the period 1995–s99

 

Method of treatment, if radical

From 2000

C

Institution where diagnose was determined

From 2000

C

Institution where patient is under observation

Medical institution observing the patient

C

Metastasis?

Yes/no. Only in period 1995–99

 

Number of tumours

From 2000

C

Date of last contact with patient

From 2000

 

Cause of death

From 1995. Including code of cause from 2000

C

Date of death

From 1995

 

Pathological examination

Yes/no. From 2000

C

Nationality

From 1995

C

Date cancer report received

From year 2000

 
  1. C = The field in the AKR database was formatted. I.e. data entry was restricted to possible or certain values.
  2. 1 Three fields in the database, but in the period 1993–94 the values appeared in all three fields when data were entered in one of them.