Table 2 Selection of data elements contained in POGONIS and being collected via chart abstraction for AYA treated at adults centres
Type | Elements |
|---|---|
Demographic | Age at diagnosis |
| Â | Sex |
Treatment plan | Initiation/completion dates |
| Â | Protocol names |
| Â | Clinical trial enrollment |
Diagnosis | Method of diagnosis |
| Â | Primary site, laterality |
| Â | Stage, staging system |
| Â | Extent/size of primary tumour |
| Â | Regional lymph node involvement |
| Â | Metastases at diagnosis |
| Â | Histology, tumour grade |
| Â | Molecular markers |
Chemotherapy | Plan name |
| Â | Chemotherapeutic/biologic agents |
| Â | Cumulative doses (mg/m2) - selected agents (e.g. anthracyclines, alkylators) |
| Â | Dose Units |
| Â | Dose Route |
Radiation therapy | Intent (curative vs. palliative) |
| Â | Start/stop dates |
| Â | Radiation site |
| Â | Boost site |
| Â | Dose |
| Â | Fraction number |
| Â | Radiation type/technique |
Surgery | Date |
| Â | Indication/procedure name |
| Â | Site |
| Â | Margins at resection |
| Â | Lymphadenectomy |
| Â | Completeness of resection |
Hematopoietic stem cell transplantation | Allogeneic vs. autologous |
| Â | Source of cells (marrow, peripheral blood stem cells, cord) |
| Â | Donor |
Outcomes | Relapse (date, sites) |
| Â | Progression (date) |
| Â | Second malignant neoplasms (date/site) |
| Â | Death/last follow up (date, location, cause of death) |