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Table 1 Data elements in telephone questionnaire, the African American Cancer Epidemiology Study

From: A multi-center population-based case–control study of ovarian cancer in African-American women: the African American Cancer Epidemiology Study (AACES)

Category Variables
Demographics Age, education, income, occupation
  Date and place of birth, race, ethnicity, marital status, parents race and place of birth;
Menstrual history Age at menarche, length and regularity of menstrual cycle; menstrual status, age and reason when (if) periods stopped; menopausal symptoms
Pregnancy history Number of pregnancies, age and outcome of each pregnancy; breast feeding history for each live birth
Infertility Difficulty becoming pregnant; Doctor diagnosed infertility and underlying condition; fertility treatment
Contraceptive and hormone use Birth control method: number of episodes, age of first use and length of use; Ever use of male or female hormones: type of hormone and number of episodes, age at first use and length of use.
Medical and gynecologic history All variables in the self-reported Charlson Co-Morbidity Index; Hysterectomy; Oophorectomy; Ovarian Cysts; Fibroids; Pelvic Inflammatory Disease; Endometriosis, Polycystic Ovarian Syndrome; Abnormal PAP smear; Ectopic pregnancy; Tubal ligation
Symptoms Type and length of symptoms including: pelvic abdominal discomfort; change in bowel habits; frequent or painful urination; distended or hard abdomen; lump on abdomen; fatigue or loss of appetite; side or back pains; abnormal bleeding; weight gain, swelling, or water retention; nausea, vomiting, heartburn or indigestion
Medication use Name of medications for pain or inflammation: underlying condition/ indication, age at first and last use, and length of use of medications
  Name of current prescription medications: underlying condition/indication and length of use
Radiation exposure X-rays and other imaging procedures: type and age at time of procedure, part of body scanned, and reason for the scan.
Family history of cancer 1st and 2nd degree relatives; age/age at diagnosis
Insurance, access to care Type of insurance coverage over the last ten years; where medical care was received; access to a regular doctor; interruptions in access to care, receipt of breast and/or cervical cancer screening
Trust in physicians Trust in physician scale
Social support Perceived Social Support
Perceived discrimination Perceived discrimination – major and everyday discrimination
Religiosity and spirituality Religious services attendance, spirituality, religious affiliation.
Cultural and folk beliefs Cultural and folk beliefs about fatalism and what causes cancer
Smoking Smoking status; number of cigarettes per day; age first smoked and number of years smoked; exposure to environmental smoke
Sun exposure Time spent outdoors by season: summer or spring/winter/fall; Skin effects
Talc use Regular use of cornstarch, talc, baby or deodorizing powders; age at first use, frequency of use and duration of use, use by sexual partner; occupational exposure to talc or asbestos; lived with someone who worked with talc or asbestos
Height and weight Self-reported current height and weight; weight gain and loss history; weight at age 18.
Physical activity Average weekly exercise during the last 12 months (based on International Physical Activity Questionnaire – Short Form); job-related physical activity