CaTCoN items | ||||||||
---|---|---|---|---|---|---|---|---|
Frequencies (%) | Meana | Std Dev | ||||||
CaTCoN single items | ||||||||
Caregivng tasks | ||||||||
To what extent have you had to provide: | None | A little | Some | A lot | Don’t know/not relevant | Missing | ||
1a. Practical help to the patient? | 13 | 32 | 24 | 29 | 1 | 1 | 56.9 | 34.4 |
1b. Personal care to the patient? | 49 | 26 | 12 | 8 | 2 | 3 | 25.7 | 32.0 |
1c. Psychological support to the patient? | 3 | 20 | 32 | 42 | 1 | 2 | 71.9 | 28.7 |
2. It is the responsibility of the hospitals to make referrals and appointments for examination and treatment. Have you felt that you have been partially responsible for keeping track of whether the patient has been referred and called for examinations and treatments quickly and correctly? | Not at all | To a low degree | To some degree | To a high degree | Don’t know/not relevant | Missing | ||
62 | 16 | 9 | 8 | 4 | 1 | 20.8 | 32.5 | |
3. Have you felt that you have had too much responsibility in relation to home care (personal care, medications, etc.)? | 60 | 20 | 8 | 7 | 5 | 1 | 19.7 | 30.6 |
4. Have you spent time transporting the patient? | No, not at all | Yes, a little | Yes, some | Yes, a lot | Don’t know/not relevant | Missing | ||
23 | 27 | 23 | 25 | 1 | 1 | 50.3 | 37.0 | |
Caregiving consequences | ||||||||
Has the patient’s cancer disease: | No, not at all | Yes, a little | Yes, some | Yes, a lot | Don’t know/not relevant | Missing | ||
6a. Caused you stress? | 9 | 29 | 28 | 31 | 2 | 1 | 61.0 | 32.7 |
6b. Had a negative effect on your own physical health? | 52 | 29 | 11 | 5 | 2 | 1 | 22.7 | 28.9 |
6c. Meant that you have not had enough time for (the rest of) your family? | 49 | 28 | 13 | 6 | 3 | 1 | 25.1 | 30.5 |
6d. Meant that you have not had enough time for (the rest of) your friends/acquaintances? | 45 | 28 | 14 | 9 | 3 | 1 | 29.1 | 33.0 |
6e. Increased you awareness of the important things in life? | 5 | 18 | 30 | 45 | 2 | 1 | 27.5 | 30.0 |
6 f. Caused you to make positive changes? | 19 | 39 | 24 | 11 | 5 | 1 | 57.1 | 30.7 |
6 g. Made you value your relationships with other people more? | 10 | 26 | 31 | 29 | 4 | 1 | 39.4 | 32.7 |
7. Have you been able to take time off, get leave of absence from work, or make similar arrangements to the extent it has been necessary? | Always/almost always | Mostly | Only sometimes | Rarely/never | Don’t know/not relevant | Missing | ||
40 | 13 | 4 | 4 | 38 | 2 | 17.3 | 28.4 | |
8. Has the patient’s illness meant that you have had to be absent from work so much that it has posed problems at your workplace? | Not at all | To a low degree | To some degree | To a high degree | Don’t know/not relevant | Missing | ||
50 | 11 | 4 | 1 | 33 | 1 | 11.6 | 22.7 | |
9. Have you experienced negative financial consequences of being a caregiver? | 71 | 11 | 6 | 3 | 8 | 1 | 11.6 | 24.6 |
20. Have you needed financial counselling? | No | Yes | Missing | |||||
94 | 6 | 0 | 6.1 | 24.0 | ||||
34. Have you needed to see a psychologist as a consequence of the patient’s illness? | 80 | 20 | 0 | 20.4 | 40.3 | |||
38. Have you had the need to be able to take a break from the practical tasks (in the role of caregiver) in connection to the illness? | To a high degree | To some degree | To a low degree | Not at all | Don’t know/not relevant | Missing | ||
6 | 16 | 17 | 39 | 21 | 1 | 29.0 | 33.6 | |
39. Have you felt that you have had the possibility to take a break from the practical tasks? | 18 | 18 | 14 | 14 | 35 | 1 | 46.4 | 37.1 |
40. Have you had the need to lead a ‘normal’ life at the same time as you have been a caregiver? | 38 | 29 | 12 | 8 | 12 | 1 | 70.3 | 32.4 |
41. Have you felt that you have had the possibility to lead a ‘normal’ life at the same time as being a caregiver? | 35 | 36 | 16 | 5 | 7 | 1 | 30.5 | 29.4 |
CatCoN subscales | ||||||||
Caregiving workload (items 1a, 1b, 1c, 3, 4) | 45.1 | 23.5 | ||||||
Lack of personal growth (items 6e, 6f, 6g) | 41.1 | 26.1 | ||||||
Lack of time for social relations (items 6c, 6d) | 27.3 | 30.0 |