| Study components | Total (n = 51) | ||
---|---|---|---|---|
 | Issues interviews (n = 20) | Questionnaire interviews (n = 20) | Patient focus groups (n = 11) | |
Gender | Â | Â | Â | Â |
Male | 10 | 12 | 8 | 30 |
Female | 10 | 8 | 3 | 21 |
Age | Â | Â | Â | Â |
Median (range) | 66 (41–78) | 63.5 (46–81) | 60 (41–70) | 64 (41–81) |
<65 | 10 | 12 | 6 | 27 |
≥65 | 10 | 8 | 5 | 24 |
Marital status | Â | Â | Â | Â |
Single | 0 | 2 | 1 | 3 |
Married/partnered | 14 | 15 | 9 | 38 |
Divorced/separated | 3 | 2 | 1 | 6 |
Widowed | 3 | 1 | 0 | 4 |
Ethnicity | Â | Â | Â | Â |
White British | 13 | 12 | 9 | 34 |
White Other | 1 | 1 | 0 | 2 |
Black African/Caribbean | 5 | 5 | 2 | 12 |
Other | 1 | 2 | 0 | 3 |
Religion | Â | Â | Â | Â |
Atheist | 4 | 0 | 0 | 4 |
Christian | 16 | 17 | 11 | 44 |
Other | 0 | 3 | 0 | 3 |
Highest educational level | Â | Â | Â | Â |
Did not finish school | 3 | 0 | 3 | 6 |
Secondary school graduate | 5 | 9 | 3 | 17 |
College/technical qualification | 9 | 9 | 2 | 20 |
First degree | 2 | 1 | 3 | 6 |
Higher degree | 1 | 1 | 0 | 2 |
Occupation status | Â | Â | Â | Â |
Working or student | 3 | 5 | 1 | 9 |
Not working | 3 | 3 | 2 | 8 |
Retired | 14 | 12 | 8 | 34 |
ECOG performance status | Â | Â | Â | Â |
0-2 | 10 | 11 | 11 | 32 |
3-4 | 10 | 9 | 0 | 19 |
Disease phase | Â | Â | Â | Â |
Newly diagnosed | 7 | 6 | 0 | 13 |
Stable/plateau phase | 7 | 7 | 9 | 23 |
Relapsed/progressive | 6 | 7 | 2 | 15 |
Currently on treatment | Â | Â | Â | Â |
Yes | 7 | 13 | 3 | 23 |
No | 13 | 7 | 8 | 28 |
Months since diagnosis | Â | Â | Â | Â |
0-12 | 8 | 8 | 1 | 17 |
13-24 | 7 | 1 | 1 | 9 |
25-36 | 2 | 0 | 0 | 2 |
37-48 | 1 | 4 | 1 | 6 |
Over 48 | 2 | 7 | 8 | 17 |